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首页> 外文期刊>Frontiers in Public Health >Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce
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Genetics, Insurance and Professional Practice: Survey of the Australasian Clinical Genetics Workforce

机译：遗传学，保险和专业实践：澳大利亚临床遗传学劳动力调查

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In Australia and New Zealand, by contrast with much of the developed world, insurance companies can use genetic test results to refuse cover or increase premiums for mutually-rated insurance products, including life, income protection and disability insurance. Genetics professionals regularly discuss insurance implications with clients and report the issue as a clinical challenge, yet no studies have examined clinical practices or opinions. This study surveyed genetic counsellors and clinical geneticists from Australia and New Zealand to (i) investigate variability in professional practice across the Australasian clinical genetic workforce relating to the insurance implications of genetic testing, and (ii) ascertain views regarding current regulation of the issue. There was considerable variability in training and clinical policies, especially around the communication of insurance implications. Almost half of participants reported receiving no training on the insurance implications of genetic testing, and almost 40% were unsure whether they could adequately advise clients. A number of deficits in professional knowledge and understanding of the issue were identified. Widespread concerns regarding regulation of this area were reported, with < 10% of Australian participants considering current Australian regulations as adequate to protect clients from genetic discrimination. The findings from this study highlight scope for greater education, consistency and professional training on the issue of genetics and insurance in Australasia, and strong agreement about the need for regulatory reform.
机译：与大多数发达国家相比，在澳大利亚和新西兰，保险公司可以使用基因检测结果来拒绝承保或提高相互评级的保险产品的保费，包括人寿，收入保护和伤残保险。遗传学专业人士定期与客户讨论保险的影响，并将该问题报告为临床挑战，但尚无研究检查临床实践或意见。这项研究对来自澳大利亚和新西兰的遗传咨询师和临床遗传学家进行了调查，以（i）研究整个澳大利亚临床遗传劳动力在专业实践中与基因检测的保险含义相关的差异，以及（ii）确定有关该问题的当前法规的观点。培训和临床政策存在很大差异，尤其是在保险含义的传达方面。几乎有一半的参与者报告说他们没有接受过有关基因测试对保险的影响的培训，而近40％的参与者不确定他们是否能为客户提供充分的建议。发现了在专业知识和对该问题的理解上的许多缺陷。据报道，有关该领域法规的广泛关注，不到10％的澳大利亚参与者认为当前的澳大利亚法规足以保护客户免受遗传歧视。这项研究的结果突出了在澳大拉西亚对遗传学和保险问题进行进一步教育，一致性和专业培训的范围，并就监管改革的必要性达成了一致。

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