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Preparation and Support of Patients through the Transplant Process: Understanding the Recipients' Perspectives

机译：通过移植过程为患者做好准备和提供支持：了解收件人的观点

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Preparation for heart transplant commonly includes booklets, instructional videos, personalized teaching sessions, and mentorship. This paper explores heart transplant recipients’ thoughts on their preparation and support through the transplant process. Twenty-five interviews were audio-/videotaped capturing voice and body language and transcribed verbatim. Coding addressed language, bodily gesture, volume, and tone in keeping with our visual methodology. Recipients reported that only someone who had a transplant truly understands the experience. As participants face illness and life-altering experiences, maintaining a positive attitude and hope is essential to coping well. Healthcare professionals provide ongoing care and reassurance about recipients’ medical status. Mentors, family members, and close friends play vital roles in supporting recipients. Participants reported that only heart transplant recipients understood the experience, the hope, and ultimately the suffering associated with living with another persons’ heart. Attention needs to be focused not solely on the use of teaching modalities, but also on the development of innovative support networks. This will promote patient and caregiver engagement in self-management. Enhancing clinicians’ knowledge of the existential aspects of transplantation will provide them with a nuanced understanding of the patients’ experience, which will ultimately enhance their ability to better prepare and support patients and their caregivers.
机译：心脏移植的准备工作通常包括小册子，教学视频，个性化的教学课程和指导。本文探讨了心脏移植受者在移植过程中对其准备和支持的想法。 25项采访进行了音频/视频录制，以捕获语音和肢体语言并逐字记录。按照我们的视觉方法对语言，身体手势，音量和语调进行编码。接收者报告说，只有接受过移植的人才能真正了解这种经历。当参与者面对疾病和改变生活的经历时，保持积极的态度和希望对于良好应对至关重要。医疗保健专业人员会不断提供有关接收人医疗状况的护理和保证。指导者，家庭成员和亲密朋友在支持接收者方面起着至关重要的作用。参加者报告说，只有心脏移植接受者了解与他人心脏同住带来的经验，希望和最终的痛苦。不仅应将注意力集中在教学方法的使用上，还应将注意力集中在创新支持网络的发展上。这将促进患者和护理人员进行自我管理。增强临床医生对移植存在方面的了解将使他们对患者的经历有细微的了解，最终将增强他们更好地准备和支持患者及其护理人员的能力。

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