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首页> 外文期刊>Revista de la Sociedad Espanola de Enfermeria Nefrologica >Integral care of patient with genetic renal polycystosis: Clinical profile and subject vital experience.
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Integral care of patient with genetic renal polycystosis: Clinical profile and subject vital experience.

机译：遗传性肾多囊症患者的整体护理：临床概况和受试者重要经验。

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CALDERO URREA, M et al. Integral care of patient with genetic renal polycystosis: Clinical profile and subject vital experience. Rev Soc Esp Enferm Nefrol [online]. 2007, vol.10, n.3, pp.67-73. ISSN 1139-1375.Autosomic dominant renal polycystosis affects 5%-10% of people on haemodialysis or with kidney transplants. This study has a two-fold purpose: to determine the clinical profile of the patient with renal polycystosis and to understand how this dise ase affects different vital stages. The research design is quantitative and qualitative in order to meet each of the proposed goals. The quantitative perspective encompasses a retrospective descriptive review of the case histories of the patients treated at our centre with this diagnosis between the years 2000 and 2005 (N=161). To cover qualitative aspects of the disease, two in-depth, semi-structured interviews were carried out with people whose diagnosis has acted as a conditioning factor in personal and family decision-making. The profile of the patient with renal polycystosis is that of person with an average age of 58 years with liver polycystosis, and with a family history of the disease and several associated pathologies, the most frequent being hypertension. The in-depth interviews denote the presence of chronic pain, with an alteration of daily life and family dynamics. The uncertainty as to its evolution and treatment produces anxiety and progressive emotional wear.
机译：CALDERO URREA，M等。遗传性肾多囊症患者的整体护理：临床概况和受试者重要经验。 Rev Soc Esp Enferm Nefrol [在线]。 2007，第10卷，第3期，第67-73页。 ISSN 1139-1375。常染色体显性肾多囊症在血液透析或肾脏移植中影响5％-10％的人。这项研究有两个目的：确定患有肾脏多囊症的患者的临床情况，并了解这种疾病如何影响不同的生命阶段。研究设计是定量的和定性的，以实现每个拟议的目标。定量观点包括对我们中心在2000年至2005年间诊断的患者的病史进行回顾性描述性回顾（N = 161）。为了涵盖该疾病的定性方面，对他们的诊断已成为个人和家庭决策的条件因素的人们进行了两次深入的半结构化访谈。肾多囊症患者的概况是平均年龄为58岁的肝多囊症患者，具有该病的家族史和几种相关的病理，最常见的是高血压。深入访谈表明存在慢性疼痛，并改变了日常生活和家庭动态。关于其演变和治疗的不确定性会导致焦虑和进行性情绪磨损。

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