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The effect of peer support in adults with insulin pump-treated type 1 diabetes: a pilot study of a flexible and participatory intervention

机译:同伴支持对胰岛素泵治疗的1型糖尿病成年人的影响:一项灵活的参与性干预的初步研究

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Aim: The aim of this study was to explore the effects of a flexible and participatory peer support intervention in a clinical setting for adults with type 1 diabetes treated with an insulin pump, focusing on enhancing diabetes-specific social capital. The key questions were as follows: 1)?what effects are appropriate to expect, according to participants? and 2) to what extent did these effects occur? Methods: Two peer support intervention programs were conducted in a diabetes specialist clinic (N=30). A participatory and adaptable approach allowed flexibility in the content of peer support meetings, which were facilitated by a diabetes nurse. Individual interviews explored participants’ perception of effects of the intervention. Interview data were analyzed qualitatively. Participants (n=27) completed a baseline and postintervention questionnaire that included items assessing diabetes empowerment, diabetes distress, diabetes-specific social support, and diabetes loneliness. HbA1c levels were compared before and after the intervention. Results: Participants experienced enhanced diabetes-specific social capital, diabetes motivation, awareness of personal diabetes practices, and serenity and openness in life with diabetes. They also became more aware of treatment and support possibilities. Negative effects included feeling sad or upset after the meetings or feeling different than and not as well-controlled as other participants. Quantitative analyses showed enhanced social support, decreased eating distress and trends toward enhanced diabetes empowerment, decreased diabetes loneliness, and decreased diabetes distress (powerlessness). We found fewer positive and/or negative outcomes among participants who felt no need for peer support or felt that the group was not a unit or that important issues were not addressed. Conclusion: The study indicated that flexible and participatory peer support can strengthen diabetes-specific social capital and improve participants’ well-being and diabetes empowerment. Awareness of participants’ incentives for attending peer support, as well as the risk of people feeling isolated within peer support groups, is essential to creating effective diabetes-specific social support.
机译:目的:本研究的目的是探讨灵活和参与性的同伴支持干预对胰岛素泵治疗的1型糖尿病成年人的临床效果,重点是增强针对糖尿病的社会资本。关键问题如下:1)参与者认为什么效果合适? 2)这些影响在多大程度上发生了?方法:在糖尿病专科门诊(N = 30)进行了两个同伴支持干预计划。参与性和适应性强的方法使同伴支持会议的内容具有灵活性,这在糖尿病护士的协助下得以实现。个别访谈探讨了参与者对干预效果的看法。定性分析访谈数据。参与者(n = 27)完成了基线和干预后问卷,其中包括评估糖尿病赋权,糖尿病困扰,特定于糖尿病的社会支持和糖尿病孤独感的项目。比较干预前后的HbA1c水平。结果:参与者体验到了增强的针对糖尿病的社会资本,糖尿病动机,对个人糖尿病习惯的认识以及糖尿病患者生活中的宁静与开放。他们还更加意识到治疗和支持的可能性。负面影响包括会议后感到难过或沮丧,或者感觉与其他参与者不同,并且没有其他参与者那么好控制。定量分析显示,社会支持增加,饮食苦恼减少,增强糖尿病权能,糖尿病孤独感减少和糖尿病苦恼(无能为力)减少。我们发现参与者的积极和/或消极结果较少,他们认为不需要同伴的支持,或者认为该小组不是一个部门,或者未解决重要问题。结论:该研究表明,灵活和参与性的同伴支持可以增强针对糖尿病的社会资本,并改善参与者的福祉和增强糖尿病的能力。了解参与者参与同伴支持的动机,以及人们在同伴支持组中感到孤立的风险,对于创建有效的针对糖尿病的社会支持至关重要。

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