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首页> 外文期刊>Patient Preference and Adherence >Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children
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Association between perceived treatment adherence and health-related quality of life in children with juvenile idiopathic arthritis: perspectives of both parents and children

机译：幼年特发性关节炎儿童的治疗依从性与健康相关的生活质量之间的关联：父母和孩子的观点

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Objective: The aim of the study was to examine the relationship between perceived treatment adherence and health-related quality of life (HRQOL) in children with arthritis, from both parent and child perspectives.Methods: Patients and their parents, who attended the juvenile idiopathic arthritis (JIA) clinic at the Montreal Children's Hospital, completed the Juvenile Arthritis Quality of Life Questionnaire (JAQQ), and either the Child Adherence Report Questionnaire (CARQ) or the Parent Adherence Report Questionnaire (PARQ). Linear regression models examined the associations between perceived treatment adherence and HRQOL while adjusting for age, severity, duration of the disease, and complexity of the medical regimen.Results: Perceived adherence to medications was associated with a better HRQOL total score from the children’s perspective (β = ?0.02, 95% confidence interval [CI] = ?0.03, ?0.004), particularly with respect to gross motor (β = ?0.03, 95% CI = ?0.05, ?0.01) and psychosocial functions (β = ?0.03, 95% CI = ?0.04, ?0.01). According to parents, perceived adherence to exercises was associated with fewer symptoms (β = ?0.01, 95% CI = ?0.03, 0.000) and better psychosocial functioning (β = ?0.01, 95% CI = ?0.03, ?0.002).Conclusion: Perceived adherence to medications is associated with an improved HRQOL according to children. According to parents, adherence to exercises may be associated with an improved HRQOL.
机译：目的：本研究旨在从父母和孩子的角度研究关节炎儿童的治疗依从性与健康相关生活质量（HRQOL）之间的关系。方法：参加过幼年特发性疾病的患者及其父母蒙特利尔儿童医​​院的关节炎（JIA）诊所完成了《青少年关节炎生活质量调查表》（JAQQ）和《儿童依从性报告调查表》（CARQ）或《父母依从性报告调查表》（PARQ）。线性回归模型检查了依从治疗的依从性和HRQOL之间的关联，同时调整了年龄，严重程度，疾病持续时间和医疗方案的复杂性。结果：从儿童的角度来看，对药物的依从性感知与更好的HRQOL总评分相关（ β=α0.02，95％置信区间[CI] =α0.03，α0.004），特别是关于大运动（β=α0.03，95％CI =α0.05，α0.01）和社会心理功能（β=α0.03） ，95％CI =？0.04，？0.01）。父母认为，坚持运动与更少的症状（β= 0.01，95％CI = 0.03，0.000）和更好的社会心理功能相关（β= 0.01，95％CI = 0.03，0.002）。 ：根据儿童的看法，对药物的依从性与HRQOL的改善有关。父母认为，坚持锻炼可能会改善HRQOL。

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