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The relationship between caregiver impacts and the unmet needs of survivors of stroke

机译：照顾者的影响与中风幸存者未满足的需求之间的关系

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Background: Caregivers play a crucial role in meeting the needs of survivors of stroke. Yet, little is known about how they are impacted by their caregiving role. Objectives: To describe the relationship between survivor long-term unmet needs (>12 months) and caregiver impacts, and identify characteristics that are associated with reported moderate to severe impacts on caregivers. Method: This was a cross-sectional survey using data from the Australian Stroke Survivor and Carer Needs Survey. Community dwelling adults 12+ months poststroke and their caregivers participated. Caregivers and survivors were asked about the extent to which the domains of work, leisure and family, and friend and spousal relationships had been impacted using a Likert scale of responses. The extent to which survivor needs were being met was measured over the domains of health, everyday living, work, leisure, and finances, and the total number of unmet needs was calculated. The association between survivor unmet needs and caregiver impacts was assessed using multivariable logistic regression adjusted for caregiver and survivor characteristics. Results: Of the 738 completed survivor surveys, 369 contained matched caregiver data (survivors: median age, 71 years; 67% male) (caregivers: median age, 64 years; 26% male). For caregivers, the domains of work, leisure, and friendships were most impacted. The odds of a caregiver experiencing moderate to extreme impacts increased with the number of reported survivor unmet needs. This was greatest for spousal (aOR [adjusted odds ratio]: 1.14; 95% CI [confidence interval]: 1.07, 1.21; P<0.001) and friend relationships (aOR: 1.14; 95% CI: 1.07, 1.21; P<0.001). Caring for a survivor who needed daily living assistance was associated with moderate to extreme caregiver impacts across all domains. Conclusion: Caregivers of survivors of stroke experience large negative impacts, the extent to which is associated with survivors unmet needs. Targeted, long-term solutions are needed to support survivors and caregivers living in the community.
机译：背景：护理人员在满足中风幸存者的需求方面起着至关重要的作用。然而，人们对其护理角色的影响方式知之甚少。目的：描述幸存者长期未满足的需求（> 12个月）与照顾者影响之间的关系，并确定与所报告的对照顾者的中度至严重影响相关的特征。方法：这是一项横断面调查，使用了来自澳大利亚中风幸存者和护理者需求调查的数据。中风后12个月以上有社区居民，其照料者参加了活动。照料者和幸存者被问及使用李克特量表对工作，休闲和家庭以及朋友和配偶关系等领域的影响程度。在健康，日常生活，工作，休闲和经济方面，衡量满足幸存者需求的程度，并计算未满足需求的总数。幸存者未满足需求与照顾者影响之间的关联使用针对照顾者和幸存者特征进行了调整的多变量逻辑回归进行评估。结果：在738份完整的幸存者调查中，有369份包含相匹配的看护者数据（幸存者：中位年龄，71岁; 67％男性）（看护者：中位年龄，64岁; 26％男性）。对于看护者而言，工作，休闲和友谊领域受到的影响最大。据报告，幸存者未满足需求的数量增加了照顾者遭受中度到极端影响的几率。这对配偶（aOR [调整后的比值比]：1.14; 95％CI [置信区间]：1.07，1.21; P <0.001）和朋友关系（aOR：1.14; 95％CI：1.07，1.21; P <0.001）最高）。照顾需要日常生活帮助的幸存者与在所有领域中中等至极端看护者的影响有关。结论：中风幸存者的照料者会遭受很大的负面影响，其程度与未满足需求的幸存者有关。需要有针对性的长期解决方案来支持社区中的幸存者和看护者。

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