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Patient autonomy in chronic care: solving a paradox

机译:慢性病患者的自主权:解决一个矛盾

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Abstract: The application of the principle of autonomy, which is considered a cornerstone of contemporary bioethics, is sometimes in obvious contradiction with the principle of beneficence. Indeed, it may happen in chronic care that the preferences of the health care provider (HCP), who is largely focused on the prevention of long term complications of diseases, differ from those, more present oriented, preferences of the patient. The aims of this narrative review are as follows: 1) to show that the exercise of autonomy by the patient is not always possible; 2) where the latter is not possible, to examine how, in the context of the autonomy principle, someone (a HCP) can decide what is good (a treatment) for someone else (a patient) without falling into paternalism. Actually this analysis leads to a paradox: not only is the principle of beneficence sometimes conflicting with the principle of autonomy, but physician's beneficence may enter into conflict with the mere respect of the patient; and 3) to propose a solution to this paradox by revisiting the very concepts of the autonomous person, patient education, and trust in the patient–physician relationship: this article provides an ethical definition of patient education.
机译:【摘要】自治原则的应用有时被认为是与现代慈善原则相矛盾的,而自治原则被认为是当代生物伦理学的基石。实际上,在长期护理中可能发生的情况是,医疗保健提供者(HCP)的偏好主要集中于预防疾病的长期并发症,与患者的偏好(目前更为偏重)有所不同。叙述性综述的目的如下:1)证明患者并非总是可以行使自主权; 2)在后者不可能的情况下,研究在自治原则的背景下,某人(HCP)如何能够决定对其他人(患者)有什么好处(一种治疗)而不会陷入家长式歧视。实际上,这种分析导致了一个悖论:不仅慈善原则有时与自治原则相抵触,而且医师的仁慈可能与患者的尊重相冲突。 3)通过重新审视自主人,患者教育以及对患者与医师之间关系的信任这一概念,提出解决此悖论的方法:本文提供了患者教育的伦理定义。

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