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Quality of life and type 1 diabetes: a study assessing patients’ perceptions and self-management needs

机译：生活质量和1型糖尿病：一项评估患者感知和自我管理需求的研究

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Purpose: The main objective of this study was to assess quality of life (QoL) and treatment satisfaction in a group of patients with type 1 diabetes (T1D) and explore their needs regarding and their perception of QoL living with diabetes.Materials and methods: Patients with type 1 diabetes attending the outpatient endocrinology clinics of a reference hospital were invited to participate in a cross-sectional study. Clinical and sociodemographic data were obtained (interview and clinical records), and diabetes-related QoL was assessed using a standardized questionnaire. In 67 participants, satisfaction with treatment was also assessed, and an open interview was performed, assessing the impact of diabetes, long-term worries, flexibility, restrictions, and self-perception of QoL. Descriptive statistical analysis, bivariate analysis, and multivariate analysis were performed in order to find factors associated with QoL. Interviews were analyzed and summarized questionwise.Results: Mean patient age was 31.4±11.6?years, diabetes duration 14.2±9.3?years, and glycated hemoglobin (HbA1c) 8.5%±1.9% (69±20.8?mmol/mol International Federation of Clinical Chemistry [IFCC]). The questionnaires showed good average QoL scores (94.6+22.9) and treatment satisfaction scores (25.7±6.7). QoL worsened with increasing HbA1c, female sex, severity of complications, and lower education (r2=0.283, P<0.005). In the open interview, 68.5% of the patients reported that diabetes had changed their lives, 83.5% identified complications as their most important long-term concern, and 59.7% said that they needed more training to manage the disease.Conclusion: Poor glycemic control, lower education, complications, and female sex are associated with worse QoL. Semi-structured interviews identified aspects not included in the standardized questionnaires.
机译：目的：这项研究的主要目的是评估一组1型糖尿病（T1D）患者的生活质量（QoL）和治疗满意度，并探讨他们对糖尿病患者生活质量的需求和看法。邀请到参考医院的门诊内科门诊就诊的1型糖尿病患者参加横断面研究。获得临床和社会人口统计学数据（访谈和临床记录），并使用标准化问卷对糖尿病相关的生活质量进行评估。在67名参与者中，还评估了对治疗的满意度，并进行了公开访谈，评估了糖尿病的影响，长期担忧，灵活性，局限性以及对QoL的自我认知。为了发现与QoL相关的因素，进行了描述性统计分析，双变量分析和多元分析。结果：平均患者年龄为31.4±11.6岁，糖尿病病程为14.2±9.3岁，糖化血红蛋白（HbA1c）为8.5％±1.9％（69±20.8μmmol/ mol，国际临床联合会）化学[IFCC]）。问卷显示良好的平均QoL分数（94.6 + 22.9）和治疗满意度分数（25.7±6.7）。随着HbA1c的增加，女性，并发症的严重性和受教育程度的降低，生活质量恶化（r2 = 0.283，P <0.005）。在公开访谈中，有68.5％的患者报告说糖尿病改变了他们的生活，83.5％的患者认为并发症是他们最重要的长期关注点，59.7％的患者说他们需要更多的培训以控制该病。 ，低学历，并发症和女性与生活质量较差有关。半结构化访谈确定了标准化问卷中未包含的方面。

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