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首页> 外文期刊>Patient Preference and Adherence >Medical device design for adolescent adherence and developmental goals: a case study of a cystic fibrosis physiotherapy device
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Medical device design for adolescent adherence and developmental goals: a case study of a cystic fibrosis physiotherapy device

机译：青春期依从性和发展目标的医疗设备设计：以囊性纤维化理疗设备为例

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Purpose: This study investigates the psychosocial aspects of adolescent medical device use and the impact on adolescent adherence and goals for the transitional years between child and adulthood. Patients and methods: Interviews were carried out with 20 adolescents with cystic fibrosis, investigating adolescent medical device use and experiences in relation to their personal and social lives and development through the adolescent years. The qualitative dataset was thematically examined using a content analysis method. Results: The results show that adolescent users of medical technologies want their independence and capabilities to be respected. Adolescent adherence to medical device use was associated with short- and long-term motivations, where older adolescents were able to comprehend the longer-term benefits of use against short-term inconvenience more acutely than younger adolescents. It was suggested that medical devices could provide a tool for communication with families and clinicians and could support adolescents as they take responsibility for managing their condition. Themes of “fitting into teenage life” and “use in the community” were associated with adolescents' needs to form their own identity and have autonomy. Conclusion: This study shows that adolescent needs regarding medical device use are complex. It provides evidence to suggest that devices designed inclusively for adolescents may lead to improved adherence and also facilitate transition through the adolescent years and achievement of adolescent goals.
机译：目的：本研究调查了青少年医疗器械使用的社会心理方面以及对儿童至成年过渡期对青少年依从性和目标的影响。患者和方法：采访了20名患有囊性纤维化的青少年，调查了青少年医疗器械的使用以及在整个青少年时期内与他们的个人和社交生活及发展有关的经验。使用内容分析方法对定性数据集进行了主题检查。结果：结果表明，医疗技术的青少年用户希望其独立性和能力得到尊重。青少年坚持使用医疗器械与短期和长期动机相关，在这种情况下，年龄较大的青少年比年龄较小的青少年能够更深刻地理解使用短期预防方法给长期使用带来的好处。有人建议，医疗设备可以提供与家人和临床医生进行交流的工具，并可以支持青少年负责其病情的管理。 “适应青少年生活”和“在社区中使用”的主题与青少年形成自己的身份并拥有自主权的需求有关。结论：这项研究表明，青少年对医疗器械使用的需求很复杂。它提供了证据表明，专为青少年设计的设备可能会提高依从性，并有助于在整个青春期过渡并实现青春期目标。

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