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Patient interpretation of the Patient-Generated Subjective Global Assessment (PG-SGA) Short Form

机译：患者产生的主观全局评估（PG-SGA）简短格式的患者解释

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Background: The Patient-Generated Subjective Global Assessment (PG-SGA) is a patient-reported instrument for assessment of nutrition status in patients with cancer. Despite thorough validation of PG-SGA, little has been reported about the way patients perceive, interpret, and respond to PG-SGA. The aim of this study was to investigate how patients interpret the patient-generated part of the PG-SGA, called PG-SGA Short Form. Methods: Purposive sampling was used to identify participants that had experienced weight loss and/or reduced dietary intake and/or had a low body mass index. Data were collected from 23 patients by combining observations of patients filling in the PG-SGA Short Form, think-aloud technique and structured interviews, and analyzed qualitatively using systematic text condensation. Results: Most of the participants managed to complete the PG-SGA Short Form without problems. However, participant-related and questionnaire-related sources of misinterpretation were identified, possibly causing misinterpretations or wrong/missing answers. Participants either read too fast and skipped words, or they struggled to find response options that were suitable for covering their entire situation perfectly. The word “normal” was perceived ambiguous, and the word “only” limited the participants’ possibility to accurately describe their food intake. Long recall periods in the questions and two-pieced response options made it difficult for patients to select only one option. Conclusion: The results of this study provide a unique patient perspective of using the PG-SGA Short Form and valuable input for future use and revisions of the form. The identified sources of misunderstanding could be used to develop a standardized instruction manual for patients and health care personnel using the PG-SGA Short Form.
机译：背景：患者产生的主观全局评估（PG-SGA）是一种患者报告的工具，用于评估癌症患者的营养状况。尽管对PG-SGA进行了充分的验证，但有关患者对PG-SGA的感知，解释和反应方式的报道很少。这项研究的目的是调查患者如何解释患者产生的PG-SGA简称为PG-SGA短格式的部分。方法：采用有目的的抽样来识别体重减轻和/或饮食摄入减少和/或体重指数低的参与者。通过将填写PG-SGA简表的患者观察结果，思考技术和结构化访谈相结合，从23名患者中收集数据，并使用系统的文本压缩进行定性分析。结果：大多数参与者都顺利完成了PG-SGA简短表格。但是，发现了与参与者有关和与问卷有关的误解来源，这可能导致误解或答案错误/遗漏。参与者要么读得太快而忽略了单词，要么努力寻找合适的答案选项来完美地覆盖他们的整个情况。 “正常”一词被认为是模棱两可的，而“仅”一词则限制了参与者准确描述其食物摄入量的可能性。问题中的回忆时间较长，且回答选项分为两部分，使患者难以仅选择一个选项。结论：这项研究的结果为患者使用PG-SGA简短表格提供了独特的视角，并为将来使用和修订表格提供了宝贵的意见。可以使用PG-SGA简写形式，使用已识别的误解来源来为患者和医护人员开发标准化的指导手册。

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