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首页> 外文期刊>Pilot and Feasibility Studies >Study protocol for Enhancing Parenting In Cancer (EPIC): development and evaluation of a brief psycho-educational intervention to support parents with cancer who have young children
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Study protocol for Enhancing Parenting In Cancer (EPIC): development and evaluation of a brief psycho-educational intervention to support parents with cancer who have young children

机译：加强癌症育儿的研究方案（EPIC）：开发和评估简短的心理教育干预措施，以支持有小孩的癌症父母

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Parents with cancer have high rates of psychological morbidity, and their children are at risk of poor psychosocial outcomes, particularly in the context of parental distress and poor family communication. Parents express concerns about the impact of cancer on their children and report a lack of professional guidance in meeting their children’s needs. Few parenting interventions exist and current interventions have extensive infrastructure demands making them unsuitable for routine use in most health settings. The aims of this study are to develop and establish the feasibility and acceptability of a novel and accessible psycho-educational intervention to improve parenting efficacy and decrease parental stress among adults with cancer who have children aged 3–12?years. The intervention will be suitable for parents with cancer who are receiving treatment with a view to longer term survival, irrespective of cancer diagnosis, and their respective co-parents.Methods/designThis study comprises two phases using the UK Medical Research Council framework for developing complex interventions. In the development phase, intervention content will be iteratively developed and evaluated in consultation with consumers, and in the piloting phase, feasibility will be tested in a clinical sample of 20 parents with cancer and their co-parents using a single arm, pre-test post-test design. The intervention will comprise an audiovisual resource (DVD), a question prompt list, and a telephone call with a clinical psychologist. Questionnaires administered pre- and 1?month post-intervention will assess parental stress, psychological morbidity, quality of life, self-efficacy and perceptions of child adjustment, and family functioning. Intervention feasibility will be determined by mixed-method participant evaluation of perceived usefulness, benefits, and acceptability.DiscussionThis new initiative will translate existing descriptive evidence into an accessible intervention that supports parenting during cancer treatment and meets the information needs of parents with cancer and their families. This is an important advance: despite increasing recognition of the impact of parental cancer on the family, intervention research lags behind the descriptive literature. This low-intensity, accessible, and targeted intervention places minimal burden on infrastructure and promotes patient autonomy and self-management. If feasible, this style of intervention may be a template for future interventions with similar populations.
机译：患有癌症的父母的心理发病率很高，他们的孩子有可能遭受不良的社会心理影响，特别是在父母困扰和家庭沟通不佳的情况下。父母对癌症对孩子的影响表示担忧，并报告在满足孩子需求方面缺乏专业指导。很少有育儿干预措施，当前的干预措施对基础设施的要求很高，使其不适合大多数健康状况的常规使用。这项研究的目的是开发并建立一种新颖且可行的心理教育干预措施的可行性和可接受性，以提高育有3-12岁儿童的癌症成年人的育儿功效并减少父母的压力。该干预措施将适用于接受癌症治疗以期长期生存的父母，无论其是否诊断出癌症，以及他们各自的共同父母。方法/设计本研究包括两个阶段，使用英国医学研究理事会框架开发复杂的干预。在开发阶段，将与消费者协商反复制定和评估干预内容，在试验阶段，将通过单臂，预测试对20名患有癌症的父母及其同父母的临床样本进行可行性测试。测试后设计。干预措施将包括视听资源（DVD），问题提示列表以及与临床心理学家的电话。干预前和干预后1个月进行的问卷调查将评估父母的压力，心理发病率，生活质量，自我效能感和对子女适应的看法以及家庭功能。干预的可行性将由参与者对感知到的有用性，益处和可接受性的混合方法评估来确定。 。这是一个重要的进步：尽管人们越来越认识到父母癌症对家庭的影响，但干预研究仍落后于描述性文献。这种低强度，可访问且有针对性的干预措施将对基础设施的负担降至最低，并促进了患者的自主权和自我管理能力。如果可行的话，这种干预方式可以作为未来类似人群干预措施的模板。

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