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Activity and views of service users involved in mental health research: UK survey

机译:参与心理健康研究的服务使用者的活动和观点:英国调查

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Background Optimisation of the process and outcomes of service user involvement in research is dependent on understanding current practice, challenges and opportunities. Aims To describe activities, roles and experiences of service users involved in mental health research. Method National cross-sectional online questionnaire survey, using snowball sampling. Descriptive statistics and framework analysis undertaken collaboratively with a service user reference group. Results The survey revealed a previously undescribed, highly qualified service user research workforce. Positioned within and alongside mainstream research, respondents reported drawing on extensive service use, and passion for service improvement to challenge perceived clinical academic dominance of research. The support of peers was crucial to involvement, which typically enhanced mental health but for some, pervasive stigma and scrutiny undermined self-confidence and practical difficulties challenged equitable participation. Conclusions Recognition of the service user research workforce will support the constructive amalgamation of academic and experiential expertise needed to shape and realise investment in mental health research.
机译:背景技术服务用户参与研究的过程和结果的优化取决于对当前实践,挑战和机遇的了解。目的描述参与心理健康研究的服务使用者的活动,角色和经验。方法全国横断面在线问卷调查,采用雪球采样法。与服务用户参考小组协作进行描述性统计和框架分析。结果调查显示,以前没有描述过的高素质服务用户研究人员。与主流研究并列的是,受访者表示,他们广泛使用服务,并热衷于改善服务,以挑战人们对临床研究在临床上的主导地位的挑战。同行的支持对于参与至关重要,参与通常可以提高心理健康水平,但是对于某些人来说,普遍的污名和仔细检查破坏了自信心,而实际困难挑战了公平参与。结论对服务用户研究人员的认可将支持在塑造和实现对精神健康研究的投资方面所需要的学术和经验专业知识的建设性融合。

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