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Achieving meaningful participation of people who use drugs and their peer organizations in a strategic research partnership

机译：使吸毒者及其同伴组织有意义地参与战略研究伙伴关系

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Peer-led programs with people who use drugs (PWUD) have been a key characteristic of the harm reduction in many countries, including their involvement in research. However, peer involvement in research is often limited to recruitment, consultation, and reporting back, rather than a genuine collaboration in the priority setting, design, and conduct of research. PWUD peer organizations face ongoing challenges to demonstrate the depth of their knowledge of current and emerging issues within drug-using networks and the value of their peer insights for effective research and policy. The identification of benefits, barriers, and enablers for meaningful participation of PWUD in research has often been limited to methodological rather than system level factors. This paper draws on the experiences and findings of the What Works and Why (W3) Project, a 5-year collaborative study with peer organizations. The study drew on systems thinking methods to develop a framework to demonstrate the role of peer organizations within their community and policy systems. The study required peer staff and researchers to undertake the simultaneous role of drivers, participants, and analysts in the research. To identify the learnings in relation to meaningful participation of PWUD peer organizations in research, we drew together the insights and experiences of peer staff and researchers across the 5?years of the study The W3 Project provided insights into the nuances of community-engaged research practice and the ongoing benefits, barriers, and enablers to the meaningful participation of PWUD and their peer organizations. These included system-level barriers and enablers beyond individual research projects or methodology. The capacity of research and peer organizations to maintain meaningful peer participation in research can be restricted or enhanced by the systems in which they are embedded. Recognizing peer organizations as active participants and drivers within community and policy systems can help clarify their unique and critical role in research. Achieving meaningful collaboration with PWUD peer organizations requires looking beyond good practice methods to the system-level factors with attention to the system-level benefits, barriers, and enablers.
机译：在许多国家，与吸毒者同行领导的计划已成为减少危害的关键特征，包括参与研究。但是，同伴参与研究通常仅限于招募，咨询和报告，而不是在重点确定，设计和进行中进行真正的合作。 PWUD同行组织面临不断的挑战，以证明他们对毒品使用网络中当前和正在出现的问题的了解的深度，以及同行见识对于有效研究和政策的价值。确定PWUD有意义地参与研究的好处，障碍和促成因素通常仅限于方法论而非系统层面的因素。本文借鉴了与同行组织进行的为期5年的协作研究“什么起作用，为什么（W3）”项目的经验和发现。该研究利用系统思维方法来开发一个框架，以证明同级组织在其社区和政策系统中的作用。该研究要求同事和研究人员在研究中同时扮演驱动者，参与者和分析师的角色。为了确定与PWUD同行组织有意义地参与研究有关的学习，我们汇总了研究的5年中同行工作人员和研究人员的见解和经验。W3项目提供了对社区参与的研究实践细微差别的见解。以及PWUD及其同行组织有意义参与的持续利益，障碍和促成因素。其中包括系统水平的障碍和促成因素，而不仅仅是单个研究项目或方法论。研究和同行组织保持有意义的同行参与研究的能力可以通过嵌入其中的系统来限制或增强。将同行组织视为社区和政策系统中的积极参与者和推动者，可以帮助阐明其在研究中的独特和关键作用。要与PWUD对等组织实现有意义的协作，不仅需要从良好的实践方法出发，还要着眼于系统级因素，同时要关注系统级收益，障碍和推动者。

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