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首页> 外文期刊>JMIR public health and surveillance. >How Best to Obtain Valid, Verifiable Data Online From Male Couples? Lessons Learned From an eHealth HIV Prevention Intervention for HIV-Negative Male Couples
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How Best to Obtain Valid, Verifiable Data Online From Male Couples? Lessons Learned From an eHealth HIV Prevention Intervention for HIV-Negative Male Couples

机译：如何最好地从男性夫妇在线获取有效的，可验证的数据？从电子卫生保健艾滋病毒阴性男性夫妇的艾滋病毒预防干预中吸取的教训

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Background: As interest increases in the development of eHealth human immunodeficiency virus (HIV)-preventive interventions for gay male couples, Web-based methods must also be developed to help increase the likelihood that couples enrolled and data collected from them represent true unique dyads. Methods to recruit and collect reliable and valid data from both members of a couple are lacking, yet are crucial for uptake of novel sexual health and HIV-prevention eHealth interventions. Methods to describe best practices to recruit male couples using targeted advertisements on Facebook are also lacking in the literature, yet could also help in this uptake. Objective: The objective of our study was to describe challenges and lessons learned from experiences from two phases (developmental phase and online randomized controlled trial [RCT]) of an eHealth HIV-prevention intervention for concordant HIV-negative male couples in terms of (1) recruiting male couples using targeted advertisements on Facebook, (2) validating that data came from two partners of the couple, and (3) verifying that the two partners of the couple are in a relationship with each other. Methods: The developmental phase refined the intervention via in-person focus groups, whereas the pilot-testing phase included an online RCT. For both phases, couples were recruited via targeted Facebook advertisements. Advertisements directed men to a study webpage and screener; once eligible, participants provided consent electronically. A partner referral system was embedded in the consenting process to recruit the relationship partner of the participant. Both men of the couple had to meet all eligibility criteria—individually and as a couple—before they could enroll in the study. Verification of couples’ relationships was assessed via the concurrence of predetermined screener items from both partners, done manually in the developmental phase and electronically in the pilot-testing phase. A system of decision rules was developed to assess the validity that data came from two unique partners of a couple. Results: Several important lessons were learned from these experiences, resulting in recommendations for future eHealth studies involving male couples. Use of certain “interests” and types of images (eg, shirtless) in targeted Facebook advertisements should be avoided or used sparingly because these interests and types of images may generate adverse reactions from a broader audience. Development of a systematic approach with predetermined criteria and parameters to verify male couples’ relationships is strongly recommended. Further, researchers are encouraged to develop a system of decision rules to detect and handle suspicious data (eg, suspicious email addressesames, multiple entries, same IP address used in multiple entries) to help validate the legitimacy of male couples’ relationships online. Conclusions: These lessons learned combined with recommendations for future studies aim to help enhance recruitment efforts and the validity and reliability of collecting dyadic data from male couples for novel eHealth HIV-preventive interventions.
机译：背景：随着对同性恋男性对eHealth预防人类免疫缺陷病毒（HIV）干预措施发展的兴趣增加，还必须开发基于Web的方法，以帮助增加夫妇登记的可能性，并从中收集数据代表真正的独特二元组。缺乏从夫妻双方中收集和收集可靠有效数据的方法，但对于采用新颖的性健康和预防HIV的eHealth干预至关重要。文献中也缺乏描述在Facebook上使用针对性广告招募男性夫妇的最佳做法的方法，但也可能有助于这种吸收。目的：我们的研究目的是描述针对一致的HIV阴性男性夫妇的eHealth HIV预防干预的两个阶段（开发阶段和在线随机对照试验[RCT]）的经验教训和挑战，其依据是（1 ）在Facebook上使用针对性的广告招募男性夫妇，（2）验证数据来自夫妇的两个伴侣，并且（3）验证夫妇的两个伴侣之间有关联。方法：开发阶段通过面对面的焦点小组改进了干预措施，而试点测试阶段包括了在线RCT。在这两个阶段，都通过有针对性的Facebook广告招募了夫妻。广告引导人们进入研究网页和筛选器;符合条件的参与者将以电子方式提供同意书。在同意过程中嵌入了伙伴推荐系统，以招募参与者的关系伙伴。这对夫妇中的两个人都必须满足所有资格标准（无论是个人还是夫妇），然后才能参加研究。双方关系的验证是通过双方合作伙伴预定筛查项目的同时进行的，在开发阶段手动完成，在试点测试阶段以电子方式完成。开发了决策规则系统，以评估数据是否来自一对夫妇的两个唯一伙伴的有效性。结果：从这些经验中学到了一些重要的经验教训，从而为今后涉及男性夫妇的eHealth研究提出了建议。应避免或谨慎地在目标Facebook广告中使用某些“兴趣”和图像类型（例如，光着膀子），因为这些兴趣和图像类型可能会引起广大受众的不良反应。强烈建议开发一种具有预定标准和参数的系统方法，以验证男性夫妇之间的关系。此外，鼓励研究人员开发决策规则系统，以检测和处理可疑数据（例如，可疑电子邮件地址/名称，多个条目，用于多个条目的相同IP地址），以帮助验证男性夫妻在线关系的合法性。结论：这些经验教训与对未来研究的建议相结合，旨在帮助加强征募工作，以及从男性夫妇那里收集二元数据以进行新型的eHealth HIV预防干预措施的有效性和可靠性。

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