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首页> 外文期刊>JMIR diabetes. >A Novel Approach to Identifying Barriers and Facilitators in Raising a Child With Type 1 Diabetes: Qualitative Analysis of Caregiver Blogs
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A Novel Approach to Identifying Barriers and Facilitators in Raising a Child With Type 1 Diabetes: Qualitative Analysis of Caregiver Blogs

机译：在抚养1型糖尿病儿童中识别障碍和促进者的新方法：看护者博客的定性分析

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Background: With rising incidence of type 1 diabetes (T1D) diagnoses among children and the high levels of distress experienced by the caregivers of these children, caregiver support is becoming increasingly important. Historically, relatively few support resources have existed. Increasing use of the Internet, and blogs in particular, has seen a growth of peer support between caregivers of children with T1D. However, little is known about the type and quality of information shared on T1D caregiver blogs. At the same time, the information on such blogs offers a new window into what challenges and successes caregivers experience in helping to manage their children’s T1D. Objective: The purpose of this study was to (1) analyze blogs of caregivers to children with T1D to better understand the challenges and successes they face in raising a child with T1D, and (2) assess the blogs for the presence of unsafe or inaccurate clinical information or advice. Methods: An inductive thematic qualitative study was conducted of three blogs authored by caregivers of children living with T1D, which included 140 unique blog posts and 663 associated comments. Two physician investigators evaluated the blogs for presence of clinical or medical misinformation. Results: Five major themes emerged: (1) the impact of the child’s diagnosis, (2) the burden of intense self-management experienced in caring for a child with T1D, (3) caregivers’ use of technology to ease their fear of hypoglycemia and impacts that device alarms associated with this technology have on caregiver burden, (4) caregivers’ perceptions of frequently missed or delayed diagnosis of T1D and the frustration this causes, and (5) the resilience that caregivers develop despite the burdens they experience. Misinformation was exceedingly rare and benign when it did occur. Conclusions: Blog analysis represents a novel approach to understand the T1D caregiver’s experience. This qualitative study found many challenges that caregivers face in raising a child with T1D. Despite the many barriers caregivers face in managing their children’s T1D, they find support through advocacy efforts and peer-to-peer blogging. Blogs provide a unique avenue for support, with only rare and benign findings of medical misinformation, and may be a resource that diabetes care providers can consider offering to families for support.
机译：背景：随着儿童中1型糖尿病（T1D）诊断的发病率上升，以及这些儿童的照料者所经历的痛苦高发，照料者的支持变得越来越重要。从历史上看，存在相对较少的支持资源。互联网（尤其是博客）的使用不断增加，在患有T1D的儿童的照护者之间，同伴的支持也在增长。但是，对于T1D照护者博客上共享信息的类型和质量知之甚少。同时，此类博客上的信息为看护者在帮助管理子女的T1D方面遇到的挑战和成功提供了新的窗口。目的：本研究的目的是（1）分析针对T1D儿童的看护者博客，以更好地了解他们在抚养T1D儿童方面所面临的挑战和成功;（2）评估博客中是否存在不安全或不准确的信息临床信息或建议。方法：对由T1D患儿的照料者撰写的三个博客进行了归纳性主题定性研究，其中包括140个独特的博客帖子和663条相关评论。两位医师调查员评估了博客中是否存在临床或医学错误信息。结果：出现了五个主要主题：（1）儿童诊断的影响;（2）照料患有T1D儿童的强烈自我管理负担;（3）护理人员使用技术减轻对低血糖症的恐惧以及与此技术相关的设备警报对护理人员负担的影响;（4）护理人员对T1D经常漏诊或延迟诊断的感知以及由此引起的挫败感;以及（5）护理人员尽管承受了负担，但仍具有一定的适应能力。错误信息的确非常罕见且良性。结论：博客分析是一种了解T1D护理人员经历的新颖方法。这项定性研究发现护理人员抚养T1D儿童面临许多挑战。尽管照顾者在管理孩子的T1D方面面临许多障碍，但他们通过倡导工作和点对点博客来获得支持。博客提供了独特的支持渠道，只有很少和良性的医学错误信息，并且可能是糖尿病护理提供者可以考虑向家庭提供支持的资源。

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