• 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Journal of Personalized Medicine >Cancer Genetic Counselor Information Needs for Risk Communication: A Qualitative Evaluation of Interview Transcripts
【24h】

Cancer Genetic Counselor Information Needs for Risk Communication: A Qualitative Evaluation of Interview Transcripts

机译：癌症遗传顾问对风险沟通的信息需求：访谈记录的定性评估

获取原文
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

Personalized medicine is a model of healthcare that is predictive, personalized, preventive and participatory (“P4 Medicine”). Genetic counselors are an ideal group to study when designing tools to support cancer P4 Medicine activities more broadly. The goal for this work was to gain a better understanding of the information cancer genetic counselors seek from their patients to facilitate effective information exchange for discussing risk. This was an analysis of a qualitative data set from interviews of eight cancer genetic counselors, recruited from three institutions. Genetic counselors at each site were interviewed using a semi-structured, open-ended questionnaire. A selective coding approach was used to determine major themes associated with genetic counseling information needs for communicating risk. We generated a model for understanding categories of genetic counseling information needs to support risk communication activities. Common activities for risk communication included risk assessment and tailoring communication. Categories of information needs included: (a) clinical patient characteristics, (b) social and cognitive patient characteristics and (c) patient motivation and goals for the genetic counseling session. A logical next step is for this model to inform the design of software systems for pre-visit patient planning and delivering just-in-time educational information to facilitate cancer risk communication activities.
机译：个性化医学是一种具有预测性，个性化，预防性和参与性的医疗保健模式（“ P4医学”）。在设计更广泛地支持癌症P4 Medicine活动的工具时，遗传顾问是理想的研究对象。这项工作的目的是更好地了解遗传咨询师从患者那里寻求的信息，以促进有效的信息交流以讨论风险。这是对从三个机构招募的八位癌症遗传咨询师的访谈中定性数据集的分析。使用半结构，开放式问卷调查了每个站点的遗传咨询师。选择性编码方法用于确定与遗传咨询信息需求相关的主要主题，以传达风险。我们生成了一个模型，用于理解遗传咨询信息的类别，以支持风险交流活动。风险沟通的常见活动包括风险评估和量身定制的沟通。信息需求的类别包括：（a）临床患者特征，（b）社会和认知患者特征以及（c）遗传咨询会议的患者动机和目标。对于该模型而言，合乎逻辑的下一步是告知软件系统的设计，以便进行预先患者计划并提供及时的教育信息，以促进癌症风险交流活动。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号