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首页> 外文期刊>Journal of participatory medicine. >Information and Communication Technologies to Support Chronic Disease Self-Management: Preconditions for Enhancing the Partnership in Person-Centered Care
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Information and Communication Technologies to Support Chronic Disease Self-Management: Preconditions for Enhancing the Partnership in Person-Centered Care

机译：支持慢性病自我管理的信息和通信技术：加强以人为中心的护理伙伴关系的前提

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Objective: In order to alleviate the pressure on health care systems exerted by the growing prevalence of chronic diseases, information and communication technologies (ICT) are being introduced to enable self-management of chronic diseases by supporting partnerships between patients and health care professionals. This move towards chronic disease self-management is accompanied by a shift in focus on integrating the patient with his or her perceptions on the chronic disease as a full-fledged partner into the health care system. This new perspective has been described as “person-centered care” (PCC). To date, information and communication technologies only partially build on the principles of PCC. This paper examines the preconditions of ICT to enable a person-centered approach to chronic disease management. Methods: Using cancer treatment as a case study for ICT-enabled PCC, we conducted a comparative analysis of thirteen scientific studies on interventions presented as ICT-enabled PCC for cancer treatment, to answer the research question: What are the preconditions of ICT-enabled PCC in chronic disease management? Based on the intended and actual outcomes, we distilled in several analytic steps the preconditions of ICT-enabled PCC for chronic disease self-management. Results: We distinguished four user-related preconditions of ICT-enabled PCC: (shared) decision making, personalized ICT, health-related quality of life, and efficiency. Conclusions: We argue that these four preconditions together can improve people’s self-management of chronic diseases by strengthening the partnership between the patient and the healthcare professional. Moreover, the study revealed a discrepancy between intended and reported actual outcomes in terms of realizing person-centered care.
机译：目的：为了减轻由于慢性病的流行而给卫生保健系统带来的压力，正在引入信息和通信技术（ICT），以通过支持患者与卫生保健专业人员之间的伙伴关系来实现慢性病的自我管理。朝着慢性疾病自我管理的方向转移的同时，重点已转移到将患者与他或她对慢性病的看法整合为健康系统的正式伴侣。这种新观点被描述为“以人为本的护理”（PCC）。迄今为止，信息和通信技术仅部分基于PCC的原理。本文研究了信息通信技术的前提条件，以实现以人为本的慢性病管理方法。方法：以癌症治疗为例，对以ICT为基础的PCC进行案例研究，我们对13种科学研究进行了比较分析，这些干预措施以ICT为基础的PCC进行癌症治疗，以回答以下研究问题：ICT促成的先决条件是什么？ PCC在慢性疾病管理中？根据预期结果和实际结果，我们通过几个分析步骤提炼了基于ICT的PCC进行慢性疾病自我管理的前提。结果：我们区分了启用ICT的PCC的四个与用户相关的前提条件：（共享）决策，个性化ICT，与健康相关的生活质量和效率。结论：我们认为这四个前提条件可以通过加强患者与医疗保健专业人员之间的伙伴关系来改善人们对慢性病的自我管理。此外，研究显示，在实现以人为中心的护理方面，预期结果与报告的实际结果之间存在差异。

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