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首页> 外文期刊>Journal of Multidisciplinary Healthcare >Involving “authentic” cancer patients, their caregivers, and multidisciplinary professionals in a quality improvement trajectory in a hospital cancer pathway: a study protocol
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Involving “authentic” cancer patients, their caregivers, and multidisciplinary professionals in a quality improvement trajectory in a hospital cancer pathway: a study protocol

机译：使“真实的”癌症患者，其护理人员和多学科专业人员参与医院癌症途径的质量改善轨迹：一项研究方案

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Introduction: The implementation of oncology care pathways that standardize organizational procedures has improved cancer care in recent years. However, the involvement of “authentic” patients and caregivers in quality improvement of these predetermined pathways is in its infancy, especially the scholarly reflection on this process. We, therefore, aim to explore the multidisciplinary challenges both in practice, when cancer patients, their caregivers, and a multidisciplinary team of professionals work together on quality improvement, as well as in our research team, in which a social scientist, health care professionals, health care researchers, and experience experts design a research project together. Methods and design: Experience-based co-design will be used to involve cancer patients and their caregivers in a qualitative research design. In-depth open discovery interviews with 12 colorectal cancer patients, 12 breast cancer patients, and seven patients with cancer-associated thrombosis and their caregivers, and focus group discussions with professionals from various disciplines will be conducted. During the subsequent prioritization events and various co-design quality improvement meetings, observational field notes will be made on the multidisciplinary challenges these participants face in the process of co-design, and evaluation interviews will be done afterwards. Similar data will be collected during the monthly meetings of our multidisciplinary research team. The data will be analyzed according to the constant comparative method. Discussion: This study may facilitate quality improvement programs in oncologic care pathways, by increasing our real-world knowledge about the challenges of involving “experience experts” together with a team of multidisciplinary professionals in the implementation process of quality improvement. Such co-creation might be challenging due to the traditional paternalistic relationship, actual disease-/treatment-related constraints, and a lack of shared language and culture between patients, caregivers, and professionals and between professionals from various disciplines. These challenges have to be met in order to establish equality, respect, team spirit, and eventual meaningful participation.
机译：简介：近年来，标准化组织程序的肿瘤治疗途径的实施改善了癌症的治疗。但是，“真实的”患者和看护者参与这些预定途径的质量改善尚处于起步阶段，尤其是对此过程的学术反思。因此，我们的目标是探索实践中的多学科挑战，即癌症患者，其护理人员和多学科专业团队共同努力提高质量时，以及我们的研究团队中，社会科学家，卫生保健专业人员，医疗保健研究人员和经验丰富的专家共同设计了一个研究项目。方法和设计：基于经验的协同设计将用于使癌症患者及其护理人员参与定性研究设计。将对12位大肠癌患者，12位乳腺癌患者和7位癌症相关血栓形成患者及其护理人员进行深入的公开发现访谈，并与来自各个领域的专业人员进行焦点小组讨论。在随后的优先级活动和各种协同设计质量改进会议中，将对这些参与者在协同设计过程中面临的多学科挑战进行观察性现场笔记，然后进行评估访谈。在我们的多学科研究团队的月度会议期间，将收集类似的数据。将根据常数比较方法分析数据。讨论：通过增加我们对“经验专家”与多学科专业团队一起参与质量改进实施过程所面临挑战的现实世界的了解，本研究可以促进肿瘤护理途径中的质量改进计划。由于传统的家长式关系，与疾病/治疗相关的实际限制，以及患者，护理人员和专业人员之间以及各个学科的专业人员之间缺乏共同的语言和文化，这种共同创造可能具有挑战性。为了建立平等，尊重，团队合作精神和最终有意义的参与，必须应对这些挑战。

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