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首页> 外文期刊>Journal of medical Internet research >Identifying and Understanding the Health Information Experiences and Preferences of Caregivers of Individuals With Either Traumatic Brain Injury, Spinal Cord Injury, or Burn Injury: A Qualitative Investigation
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Identifying and Understanding the Health Information Experiences and Preferences of Caregivers of Individuals With Either Traumatic Brain Injury, Spinal Cord Injury, or Burn Injury: A Qualitative Investigation

机译：识别和了解患有颅脑外伤，脊髓损伤或烧伤的个人的健康信息经历和看护者的偏爱：定性调查

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Background: In order to meet the challenges of caring for an injured person, caregivers need access to health information. However, caregivers often feel that they lack adequate information. Previous studies of caregivers have primarily focused on either their time and emotional burdens or their health outcomes, but the information needs of caregivers have not been thoroughly investigated.Objective: The purpose of this investigation was to identify the preferred sources of health information for caregivers supporting individuals with injuries and to explore how access to this information could be improved.Methods: A total of 32 caregivers participated in semistructured interviews, which were used in order to develop a more in-depth understanding of these caregivers’ information needs. Digital audio recordings of the interviews were used for analysis purposes. These audio recordings were analyzed using a thematic analysis or qualitative content analysis. All of participant’s interviews were then coded using the qualitative analysis program, Nvivo 10 for Mac (QSR International).Results: The caregivers endorsed similar behaviors and preferences when seeking and accessing health information. Medical professionals were the preferred source of information, while ease of access made the Internet the most common avenue to obtain information. The challenges faced by participants were frequently a result of limited support. In describing an ideal health system, participants expressed interest in a comprehensive care website offering support network resources, instructive services about the injury and caregiving, and injury-specific materials.Conclusions: According to the participants, an ideal health information system would include a comprehensive care website that offered supportive network resources, instructive services about the injury and caregiving, and materials specific to the type of patient injury.
机译：背景：为了应对照顾受伤者的挑战，看护者需要获得健康信息。但是，护理人员常常感到他们缺乏足够的信息。以前的照护者研究主要集中在他们的时间和情绪负担或他们的健康结果上，但是对照护者的信息需求尚未进行彻底调查。目的：本次调查的目的是确定适合照护者的健康信息来源方法：共有32名看护人参加了半结构化访谈，这些访谈被用来加深对这些看护人的信息需求的了解。采访的数字录音被用于分析目的。这些录音使用主题分析或定性内容分析进行了分析。然后，使用定性分析程序Nvivo 10 for Mac（QSR International）对所有参加者的访谈进行编码。结果：护理人员在寻找和访问健康信息时赞同类似的行为和偏好。医疗专业人员是首选的信息来源，而易于访问使Internet成为获取信息的最常见途径。参与者面临的挑战通常是有限支持的结果。在描述理想的卫生系统时，与会人员对建立综合支持网站，提供支持网络资源，有关伤害和护理的指导性服务以及针对特定伤害的材料表示了兴趣。护理网站，提供支持性网络资源，有关伤害和护理的指导性服务以及针对患者伤害类型的特定材料。

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