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首页> 外文期刊>Pediatrics: Official Publication of the American Academy of Pediatrics >Culture, Ethnicity, and the Family: Critical Factors in Childhood Chronic Illnesses and Disabilities
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Culture, Ethnicity, and the Family: Critical Factors in Childhood Chronic Illnesses and Disabilities

机译:文化,种族和家庭:儿童慢性病和残障的关键因素

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The family has always been implicitly and explicitly recognized as a critical social unit mediating cultural beliefs and traditions from one generation to another. This includes the mediation of beliefs and practices regarding health, illness, and chronic conditions.1 There is, however, a dearth of research linking cultural and ethnic factors to the ways in which families respond to and cope with childhood illnesses and disabilities, despite the recognition that effective health care practice involves an awareness of the strong, often covert, influence of culture in shaping family reactions and responses to health problems. In fact, cultural and ethnic sensitivity alone is no longer adequate; health care professionals must also be ethnically and culturally competent, that is, be able to recognize, respect, and engage ethnic diversity in a way that leads to mutually desirable outcomes. This expectation for cultural competence is directly related to the ever-growing percentage of ethnic minorities in the United States, particularly the increase in the number of persons of Southeast Asian and Hispanic origin, the increased risk minority status places on child development, and the emerging emphasis on, if not renaissance of, cultural and ethnic identity.The effectiveness of interactions with families of different cultural backgrounds may well be shaped by pediatricians' and other health cane professionals' awareness of and sensitivity to the influence of culture and ethnicity on children's psychosocial development as well as on the family's response to the long-term care of a child with chronic conditions or disabilities. This article attempts to encourage this line of inquiry, first, by identifying the family processes of appraisal focusing on schema and paradigms which are influenced by culture and ethnicity and which appear to come into play in shaping the family's response to the illness or disability; and, second, by focusing on two Native American cultures, aboriginal American Indians and Hawaiians, their cultures' influence on the family system and the family's response to children with chronic illness and disabilities mediated by culture.
机译:家庭一直被默示和明确地视为一个重要的社会单位,在一代又一代人之间调解了文化信仰和传统。其中包括有关健康,疾病和慢性病的信念和实践的调解。1然而,尽管文化和种族因素与家庭应对和应对儿童疾病和残疾的方式相关,但缺乏相关的研究认识到有效的医疗保健实践涉及对文化在塑造家庭反应和对健康问题的反应中的强大的(通常是秘密的)影响的认识。实际上,仅文化和种族敏感性已不再足够;医护专业人员还必须具有种族和文化能力,即能够以导致互利的结果的方式认可,尊重和参与种族多样性。对文化能力的这种期望与美国少数族裔的百分比不断增加直接相关,尤其是东南亚和西班牙裔人口的增加,少数群体对儿童发展的风险增加以及新兴国家的崛起与不同文化背景的家庭进行互动的有效性,很可能取决于儿科医生和其他健康拐杖专业人士对文化和种族对儿童心理社会影响的认识和敏感性。的发展以及家庭对患有慢性病或残疾儿童的长期照料的反应。本文首先通过确定家庭的评估过程来鼓励这种调查方式,这些评估过程侧重于受文化和种族影响并且似乎在影响家庭对疾病或残疾的反应中起作用的模式和范式;其次,通过关注两种美洲原住民文化,即原住民印第安人和夏威夷人,他们的文化对家庭系统的影响以及该文化对家庭对慢性病和残疾儿童的反应。

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