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首页> 外文期刊>BMC Health Services Research >Validation of an instrument to assess informal caregivers’ perceptions about the delivery of patient-centred care to people with intellectual disabilities in residential settings
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Validation of an instrument to assess informal caregivers’ perceptions about the delivery of patient-centred care to people with intellectual disabilities in residential settings

机译：验证仪器评估非正式护理人员对住宅环境中智力残疾人患者中心护理的看法

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Validated instruments are needed to assess the delivery of patient-centred care (PCC) to people with intellectual disabilities (PWIDs) needing 24-h care in residential settings. Eight dimensions of PCC have been identified: taking patients' preferences into account; access to care; emotional support; physical comfort; information and education; involvement of family and friends; coordination of care; and continuity and secure transition. Objective of this study is to validate an instrument to assess these eight PCC dimensions among informal caregivers of PWIDs in residential settings (institutional settings as well as group homes in the community). The original 24-item instrument was developed and validated among professionals providing care to PWIDs. This study was conducted in a disability care centre in the Netherlands. All informal caregivers of PWIDs living in institutional settings or group homes in the community in need of 24-h care were invited to participate (n?=?941). The response rate was 31% (n?=?289). We tested the instrument using structural equation modelling, and examined its validity and reliability. Confirmatory factor analyses revealed good indices of fit and overall internal consistency, as represented by Cronbach's alpha values. All eight dimensions of PCC were related positively to satisfaction with care (all p?≤?0.001). As expected, informal caregivers were less critical of PCC and its underlying dimensions, except for information and education, than were professionals working in the same disability care centre. The psychometric properties of the 24-item PCC instrument for informal caregivers (PCC-IC) were satisfactory, indicating that the PCC-IC is valid and reliable for the assessment of the eight dimensions of PCC among informal caregivers of PWIDs in residential settings.
机译：需要验证的仪器，以评估患者中心护理（PCC）向有智力障碍（PWIDS）的人提供24-H级别的人员。已识别出PCC的八个维度：考虑患者的偏好;亲属;情感支持;身体舒适;信息和教育;涉及家人和朋友;关心的协调;和连续性和安全的过渡。本研究的目的是验证仪器，以评估住宅设置中的PWID的非正式护理人员（机构设置以及社区集团家园）的非正式护理人员之间评估这八个PCC维度。在专业人员中开发并验证了原始的24件仪器，为PWIDS提供护理。该研究在荷兰的残疾护理中心进行。邀请了在机构​​环境中生活在机构环境或群体家庭中的所有非正式护理人员，需要24-H CARE参加（n？=？941）。响应率为31％（n？=？289）。我们使用结构方程建模测试了仪器，并检查了其有效性和可靠性。确认因素分析显示了符合Cronbach的alpha值的良好符合和整体内部一致性的良好指标。 PCC的所有八个维度与护理（所有P？≤≤001）呈态度呈态度。正如预期的那样，非线性护理人员对PCC的批评及其基础维度除外，除了在同一残疾护理中心工作的专业人士。非正式护理人员（PCC-IC）的24项PCC仪器的心理性能令人满意，表明PCC-IC有效可靠地评估住宅设置中PWID的非正式护理人员中PCC的八个维度。

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