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首页> 外文期刊>Iranian Journal of Neurology >Validation of Persian Individualized Neuromuscular Quality of Life in patients with muscular dystrophies
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Validation of Persian Individualized Neuromuscular Quality of Life in patients with muscular dystrophies

机译：患有肌营养不良患者的波斯个体化神经肌肉品质的验证

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Background: Neuromuscular disorders affect physical and mental aspects of a patient and in other words alter the patients’ quality of life (QOL). In the present study, we investigated the validity and reliability of the Persian version of Individualized Neuromuscular QOL (INQOL) to provide a better insight into patients’ QOL. Methods: Original version of the INQOL was translated backward and then forward. The resultant Persian version and a standard questionnaire, 36-Item Short Form Health Survey (SF-36), were then given to 83 participants with neuromuscular disorders. Internal consistency, known-group validity, concurrent validity, and test-retest reliability were assessed. Results: The scores of matched sections for QOL in the two questionnaires were favorably correlated (P 0.05). Correlation between test and retest scores was also significant (P 0.05). Moreover, the Cronbach’s alpha of 0.82 was representative of robust internal consistency between INQOL covering sections. Conclusion: The Persian version of the INQOL can be used in clinical and research practice to detect changes in QOL which are related to neuromuscular disorders, due to its favorably reliable and valid characteristics.
机译：背景：神经肌肉疾病影响患者的身心方面，换句话说，改变患者的生活质量（QOL）。在本研究中，我们调查了个性化神经肌肉QOL（INQOL）的波斯版的有效性和可靠性，为患者的QOL提供更好的洞察力。方法：原始版本的INQOL后向后翻译，然后转发。然后给出了Persian版本和标准问卷，36项短型健康调查（SF-36），给予83名与神经肌肉障碍的参与者。内部一致性，已知组有效性，并发有效性和测试重新测试可靠性。结果：两项问卷中QOL的匹配部分的得分有利相关（P <0.05）。测试和重度分数之间的相关性也显着（P <0.05）。此外，Cronbach的0.82的alpha代表Inqol覆盖部分之间的稳健内部一致性。结论：INQOL的波斯版可用于临床和研究实践，以检测与神经肌肉障碍有关的QoL的变化，因为它有利可靠，有效的特征。

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