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首页> 外文期刊>npj Digital Medicine >Aggregating multiple real-world data sources using a patient-centered health-data-sharing platform
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Aggregating multiple real-world data sources using a patient-centered health-data-sharing platform

机译：使用患者中心的健康数据共享平台聚合多个实际数据源

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Real-world data sources, including electronic health records (EHRs) and personal digital device data, are increasingly available, but are often siloed and cannot be easily integrated for clinical, research, or regulatory purposes. We conducted a prospective cohort study of 60 patients undergoing bariatric surgery or catheter-based atrial fibrillation ablation at two U.S. tertiary care hospitals, testing the feasibility of using a patient-centered health-data-sharing platform to obtain and aggregate health data from multiple sources. We successfully obtained EHR data for all patients at both hospitals, as well as from ten additional health systems, which were successfully aggregated with pharmacy data obtained for patients using CVS or Walgreens pharmacies; personal digital device data from activity monitors, digital weight scales, and single-lead ECGs, and patient-reported outcome measure data obtained through surveys to assess post-procedure recovery and disease-specific symptoms. A patient-centered health-data-sharing platform successfully aggregated data from multiple sources.
机译：现实世界数据来源，包括电子健康记录（EHRS）和个人数字设备数据，越来越多地提供，但通常是SILED，不能轻易集成临床，研究或监管目的。我们进行了一项预期队列队列研究，对两位美国第三级护理医院进行了60名接受肥胖手术或基于导管的心房颤动消融的前瞻性队列研究，测试了使用患者中心的健康数据共享平台的可行性，以从多个来源获得和汇总健康数据。我们成功获得了两家医院的所有患者的EHR数据，以及10个额外的健康系统，该系统与使用CVS或Walgreens药房的患者获得的药房数据成功汇总;来自活动监视器，数字重量尺度和单引线ECG的个人数字设备数据以及通过调查获得的患者报告的结果测量数据，以评估程序后恢复和疾病特异性症状。以患者为中心的健康数据共享平台，成功从多个源汇总数据。

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