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The development and cognitive testing of the positive outcomes HIV PROM: a brief novel patient-reported outcome measure for adults living with HIV

机译：积极结果的发展和认知检测HIV兼演：艾滋病毒患者的成年人的简要新型患者报告的结果措施

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BACKGROUND:People living with HIV experience burdensome multidimensional symptoms and concerns requiring person-centred care. Routine use of patient reported outcome measures can improve outcomes. There is no brief patient reported outcome measure (PROM) that currently reflects the breadth of concerns for people living with HIV. This study aimed to develop and cognitively test a brief novel patient reported outcome measure for use within routine adult HIV care- the "Positive Outcomes" HIV PROM.METHODS:Development followed the COSMIN taxonomy and guidance for relevance and comprehensiveness, and Rothrock guidance on development of valid patient reported outcome measures. The Positive Outcomes HIV PROM was developed by a steering group (people living with HIV, HIV professionals and health services researchers) using findings from a previously reported qualitative study of priority outcomes for people living with HIV. The prototype measure was cognitively tested with a purposive sample of people living with HIV.RESULTS:The Positive Outcomes HIV PROM consists of 23 questions (22 structured, and one open question) informed by the priorities of key stakeholders (n?=?28 people living with HIV, n?=?21 HIV professionals and n?=?8 HIV commissioners) to ensure face and content validity, and refined through cognitive testing (n?=?6 people living with HIV). Cognitive testing demonstrated high levels of acceptability and accessibility.CONCLUSIONS:The Positive Outcomes HIV PROM is the first brief patient reported outcome measure reflecting the diverse needs of people living with HIV designed specifically for use in the clinical setting to support patient assessment and care, and drive service quality improvement. It is derived from primary data on the priority outcomes for people living with HIV and is comprehensive and acceptable. Further psychometric testing is required to ensure reliability and responsiveness.
机译：背景：与艾滋病毒感染的人体验繁重的多维症状和需要以人为本的护理的担忧。常规使用患者报告的结果措施可以改善结果。没有简短的患者报告的结果措施（PROM）目前反映了艾滋病毒患者的人们担忧的宽度。本研究旨在制定和认知，在常规成人艾滋病毒护理中出现一些简要的新型患者报告的结果衡量标准 - “阳性结果”艾滋病毒舞会。霍维普舞会：发展遵循宇宙分类和相关性和全面性的指导，以及Rothrock关于发展的指导有效患者报告的结果措施。积极的结果艾滋病毒委员会是由艾滋病病毒，艾滋病毒，艾滋病病毒神主和卫生服务研究人员的人们开发的艾滋病毒舞会，使用了先前报道的艾滋病毒患者的优先事项的定性研究的调查结果。用艾滋病毒的人们的有目的性样品认知地测试了原型测量结果：结果结果艾滋病毒竞争赛的正面结果由主要利益相关者优先事项（N？= 28人（N？= 28人）提供23个问题（22种结构化和一个开放问题）与艾滋病毒生活，n？=？21艾滋病毒专业人士和n？=？认知测试展示了高水平的可接受性和可接受性。结论：阳性结果HIV PROV是第一个简要患者报告的结果措施，反映了艾滋病毒患有专门用于临床环境的艾滋病病毒的各种需求，以支持患者评估和护理，以及推动服务质量改进。它来自艾滋病毒患者的优先事项的主要数据，全面且可接受。需要进一步的心理测试来确保可靠性和响应性。

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