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首页> 外文期刊>JMIR Research Protocols >Patient-Reported Outcome Measures of Utilizing Person-Generated Health Data in the Case of Simulated Stroke Rehabilitation: Development Method
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Patient-Reported Outcome Measures of Utilizing Person-Generated Health Data in the Case of Simulated Stroke Rehabilitation: Development Method

机译：在模拟中风康复的情况下利用人产生的健康数据的患者报告的结果措施：开发方法

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Background Person-generated health data (PGHD) are health data that people generate, record, and analyze for themselves. Although the health benefits of PGHD use have been reported, there is no systematic way for patients to measure and report the health effects they experience from using their PGHD. Patient-reported outcome measures (PROMs) allow patients to systematically self-report their outcomes of a health care service. They generate first-hand evidence of the impact of health care services and are able to reflect the real-world diversity of actual patients and management approaches. Therefore, this paper argues that a PROM of utilizing PGHD, or PROM-PGHD, is necessary to help build evidence-based practice in clinical work with PGHD. Objective This paper aims to describe a method for developing PROMs for people who are using PGHD in conjunction with their clinical care— PROM-PGHD , and the method is illustrated through a case study. Methods The five-step qualitative item review (QIR) method was augmented to guide the development of a PROM-PGHD. However, using QIR as a guide to develop a PROM-PGHD requires additional socio-technical consideration of the PGHD and the health technologies from which they are produced. Therefore, the QIR method is augmented for developing a PROM-PGHD, resulting in the PROM-PGHD development method. Results A worked example was used to illustrate how the PROM-PGHD development method may be used systematically to develop PROMs applicable across a range of PGHD technology types used in relation to various health conditions. Conclusions This paper describes and illustrates a method for developing a PROM-PGHD, which may be applied to many different cases of health conditions and technology categories. When applied to other cases of health conditions and technology categories, the method could have broad relevance for evidence-based practice in clinical work with PGHD.
机译：背景技术人员生成的健康数据（PGHD）是人们为自己生成，记录和分析的健康数据。虽然报告了PGHD使用的健康益处，但患者没有系统的方法，以衡量并报告他们使用PGHD的健康影响。患者报告的结果措施（PROMS）允许患者系统地自我报告其卫生保健服务的结果。它们产生了卫生保健服务影响的第一手证据，并能够反映实际患者和管理方法的现实世界多样性。因此，本文认为，利用PGHD或PROM-PGHD的优先考虑有助于帮助在PGHD临床工作中建立基于证据的实践。目的本文旨在描述与其临床护理 - PROM-PGHD结合使用PGHD的人开发竞争的方法，并通过案例研究说明该方法。方法采用五步定性项目审查（QIR）方法，以指导开发PROM-PGHD。但是，使用QIR作为开发PROM-PGHD的指南，需要额外的Socio-Technology考虑PGHD和它们所产生的健康技术。因此，QIR方法增强了开发PROM-PGHD，导致PROM-PGHD开发方法。结果使用了一个工作的例子来说明如何系统地使用PROM-PGHD开发方法，以开发适用于各种健康状况相关的PGHD技术类型的PROM。结论本文介绍并说明了一种开发PROM-PGHD的方法，该方法可以应用于许多不同的健康状况和技术类别。当适用于其他健康状况和技术类别的情况时，该方法可以对PGHD临床工作中的基于证据的实践具有广泛的相关性。

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