• 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Journal of Clinical Sciences >Knowledge of SCD and psychosocial burden experienced by caregivers of children with SCD at a secondary level hospital in Lagos, Nigeria - A cross sectional study
【24h】

Knowledge of SCD and psychosocial burden experienced by caregivers of children with SCD at a secondary level hospital in Lagos, Nigeria - A cross sectional study

机译：对SCD的SCD和心理社会负担的知识在尼日利亚拉各斯一家二级医院的儿童照顾者经历的儿童 - 横断面研究

获取原文
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

Background: Sickle cell anemia (SCA) is the most prevalent genetic disease in the world and the most severe of the sickle cell disorders. Individuals with SCA undergo numerous psychosocial problems. The severity of the clinical status of SCA imposes differing degrees of suffering to patients and their relatives, and the overall health of these patients depends on the quality of life and psychological preparedness of the caregivers. This study assessed the knowledge of sickle cell disease (SCD) and the psychosocial burdens of the disease on caregivers. Methods: This was a cross-sectional study conducted at Massey Street Children Hospital. Following consent, an interviewer-administered structured pro forma was utilized for the survey. The study was approved by the Health, Research, and Ethics Committee with permission from the Lagos State Health Service Commission. Data were analyzed using Epi Info? 7.140. Results: Two hundred and sixteen respondents were interviewed with a mean age of 37.7 ± 7.8 years. Most of the respondents were female (90.7%) and presently married (90.7%). The mean knowledge score was 7.5 ± 2.1, with most (74.1%) of the respondents having good knowledge. The vast majority of respondents had lost income or financial benefits due to time spent caring for the child (91.2%) and reported that a child's illness disturbs activities at home (77.3%). Almost all (96.8%) reported an atmosphere of tension in the homes due to a child's illness, 80.6% reported episodes of depression and feeling sorrowful, 34% felt angry with self or child, and 14.3% felt stigmatized because of child's illness. There was a statistically significant association between respondents' level of education, gender, age, relationship to a child, and knowledge of SCD, and a higher proportion of those with good knowledge had no disruption of family interactions. Conclusion: Majority of the caregivers accessing care for children with SCD had good knowledge of the disease and experienced varied degrees of disruption in their finances, family routine, and family interaction. Improving knowledge of SCD is recommended among caregivers to alleviate psychosocial burdens, especially those associated with family interactions.
机译：背景：镰状细胞贫血（SCA）是世界上最普遍的遗传疾病，最严重的镰状细胞障碍。 SCA的个人经历了许多心理社会问题。 SCA的临床状况的严重程度对患者及其亲属的痛苦造成了不同程度的痛苦，这些患者的整体健康状况取决于护理人员的生活质量和心理准备。本研究评估了镰状细胞疾病（SCD）的知识和护理人员疾病的心理社会负担。方法：这是在Massey街儿医院进行的横断面研究。遵循同意后，采用采访者管理的结构化职业表观进行调查。该研究得到了卫生，研究和道德委员会的批准，并获得了拉各斯国家卫生服务委员会的许可。使用EPI信息分析数据？ 7.140。结果：两百十六名受访者接受了平均年龄为37.7±7.8岁。大多数受访者是女性（90.7％），目前已婚（90.7％）。平均知识评分为7.5±2.1，大多数（74.1％）受访者具有良好的知识。绝大多数受访者由于为孩子的照顾时间（91.2％）而失去了收入或经济利益，并报告了孩子的疾病在家中扰乱了活动（77.3％）。几乎所有（96.8％）报告了由于孩子的疾病，80.6％的抑郁症剧集和感到悲伤的剧集，34％令人悲伤的剧烈剧烈，而且由于孩子的疾病，令人悲伤的感觉令人悲伤，34％的人感到愤怒。受访者的教育程度，性别，年龄，与儿童关系的关系之间存在统计学意义，以及对SCD的知识，并且具有良好知识的人的比例更高，没有任何互动的互动。结论：大多数护理人员在患有SCD的儿童寻求护理的护理人员对疾病的良好了解，并且在其财务状况，家庭常规和家庭互动中经历了不同程度的中断。在护理人员中建议改善SCD的知识，以减轻心理社会负担，特别是与家庭互动相关的人。

著录项

相似文献

  • 外文文献
  • 中文文献
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号