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首页> 外文期刊>Journal of medical Internet research >Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey
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Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey

机译：在线访问挪威电子健康记录的患者使用和经验：在线调查结果

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Background The electronic health record (EHR) has been fully established in all Norwegian hospitals. Patient-accessible electronic health records (PAEHRs) are available to citizens aged 16 years and older through the national health portal Helsenorge. Objective This study aimed at understanding how patients use PAEHRs. Three research questions were addressed in order to explore (1) characteristics of users, (2) patients’ use of the service, and (3) patient experience with the service. Methods We conducted an online survey of users who had accessed their EHR online at least once through the national health portal. Patients from two of the four health regions in Norway were invited to participate. Quantitative data were supplemented by qualitative information. Results A total of 1037 respondents participated in the survey, most of whom used the PAEHR regularly (305/1037, 29.4%) or when necessary (303/1037, 29.2%). Service utilization was associated with self-reported health, age, gender, education, and health care professional background. Patients found the service useful to look up health information (687/778, 88.3%), keep track of their treatment (684/778, 87.9%), prepare for a hospital appointment (498/778, 64.0%), and share documents with their general practitioner (292/778, 37.5%) or family (194/778, 24.9%). Most users found it easy to access their EHR online (965/1037, 93.1%) and did not encounter technical challenges. The vast majority of respondents (643/755, 85.2%) understood the content, despite over half of them acknowledging some difficulties with medical terms or phrases. The overall satisfaction with the service was very high (700/755, 92.7%). Clinical advantages to the patients included enhanced knowledge of their health condition (565/691, 81.8%), easier control over their health status (685/740, 92.6%), better self-care (571/653, 87.4%), greater empowerment (493/674, 73.1%), easier communication with health care providers (493/618, 79.8%), and increased security (655/730, 89.7%). Patients with complex, long-term or chronic conditions seemed to benefit the most. PAEHRs were described as useful, informative, effective, helpful, easy, practical, and safe. Conclusions PAEHRs in Norway are becoming a mature service and are perceived as useful by patients. Future studies should include experimental designs focused on specific populations or chronic conditions that are more likely to achieve clinically meaningful benefits. Continuous evaluation programs should be conducted to assess implementation and changes of wide-scale routine services over time.
机译：背景技术电子健康记录（EHR）在所有挪威医院都完全建立。可访问的患者可访问的电子健康记录（Paehrs）可供16岁及以上的公民通过国家卫生门户赫尔辛格州赫尔辛格郡。目的本研究旨在了解患者如何使用PAEHRS。解决了三个研究问题，以探索（1）用户的特征，（2）患者使用服务，以及（3）患者服务经验。方法我们在在线通过国家卫生门户在线访问ehr的用户进行了在线调查。挪威四个卫生地区的患者被邀请参加。定量数据通过定性信息补充。结果共有1037名受访者参加了调查，大多数人经常使用PAEHR（305/1037,29.4％）或必要时（303/1037,29.2％）。服务利用率与自我报告的健康，年龄，性别，教育和医疗保健专业背景有关。患者发现服务有助于查找健康信息（687/778，88.3％），跟踪其治疗（684/778,87.9％），为医院预约做好准备（498/778,64.0％）和分享文件与他们的全科医生（292/778,37.5％）或家庭（194/778,24.9％）。大多数用户发现很容易在线访问他们的EHR（965/1037，93.1％）并且没有遇到技术挑战。绝大多数受访者（643/755,85.2％）了解内容，尽管其中一半以上承认了医疗术语或短语的一些困难。与服务的总体满意度非常高（700/755,92.7％）。患者的临床优势包括增强的健康状况知识（565/691,81.8％），更容易控制健康状况（685/740,92.6％），更好的自我护理（571/653,87.4％），更大赋权（493/674,73.1％），与医疗保健提供者更容易沟通（493/618,79.8％），增加安全性（655/730,89.7％）。患者复杂，长期或慢性病似乎是最多的受益。 Paehrs被描述为有用，信息丰富，有效，有用，容易，实用，安全。结论挪威的Paehrs正在成为成熟的服务，被认为是患者有用的。未来的研究应包括专注于特定群体或慢性条件的实验设计，这些设计更有可能在临床上有意义的益处。应进行持续评估计划，以评估随着时间的推移的实施和宽阔的日常服务变化。

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