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首页> 外文期刊>BMC Neurology >Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial
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Promoting community reintegration using narratives and skills building for young adults with stroke: a protocol for a randomised controlled trial

机译:使用中风的年轻成年人的叙事和技能建设促进社区重返社会:随机对照试验的议定书

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Stroke in adults aged between 18 and 64?years old is increasing significantly worldwide. Studies have reported that this group of young stroke survivors encounters enormous difficulties reintegrating into their social roles. Individualised discussions with healthcare professionals and learning from other survivors are imperative for them to reconstruct their identities after stroke. There is also great demand for community support during their chronic stage of recovery to help them rebuild life skills to promote reintegration. This is a randomised controlled trial to investigate the effects of a 24-week Narrative and Skills-building Intervention (NSI) on young stroke survivors’ community reintegration and psychosocial outcomes. A total of 208 adults aged 18–64?years old with a first-ever or recurrent ischaemic or haemorrhagic stroke and have been discharged home will be recruited and randomly assigned to receive usual care or usual care with NSI. The NSI is grounded in Narrative Theory and Bandura’s principles of Self-efficacy and Outcome Expectation, consisting of successive eight individual sessions over six months delivered by a trained facilitator (a registered nurse). Participants will be facilitated to narrate their survival experiences and rebuild core life skills. Videos of peer young stroke survivors’ experiences of recovery will be provided. Outcomes including community reintegration, depressive symptoms, health-related quality of life, self-efficacy, outcome expectation and satisfaction with performance of self-management behaviours will be measured before (T0) and immediately after NSI (T1), then six (T2) and 12?months after NSI (T3). Generalised estimating equations models will be used to compare the differential changes in outcomes across time between the two groups. Focus group interviews will be conducted with the facilitator at T1 and with the participants in the intervention group at T1 and T3. This study will evaluate the short and long-term effects of a theory-based NSI on young stroke survivors’ community reintegration and establish a new model of community reintegration after stroke to inform future research. The results will also provide valuable evidence to develop clinical guidelines for young stroke survivors’ community reintegration. ClinicalTrials.gov identifier: NCT04560140 , registered on 23 September, 2020.
机译:在18至64岁之间的成年人中风?岁月的全世界都在增加。研究报告说,这群年轻的中风幸存者遇到了重新融入社会角色的巨大困难。与医疗保健专业人员和其他幸存者学习的个性化讨论对他们来说是在中风后重建其身份。在他们的长期恢复期间,对社区支持的需求也很大,以帮助他们重建生命技能来促进重返社会。这是一项随机对照试验,以研究24周叙事和技能建设干预(NSI)对年轻中风幸存者社区重返社会和心理社会结果的影响。共有208名成年人18-64岁的成年人?岁月,招募和随机分配招聘家庭,并随机分配了NSI。 NSI基于叙事理论和Bandura的自我效能和结果预期原则,包括由经过培训的促进者(注册护士)交付的六个月超过六个月的连续八个个体会议。将有助于参与者叙述他们的生存经验并重建核心生活技能。同伴年轻冲程幸存者的恢复经验将得到提供。在包括社区重新融入的成果,抑郁症状,与健康相关的生活质量,自我效能,结果期望和对自我管理行为的性能的效果,并将在NSI(T1)之后立即测量(T1),然后六(T2) 12?NSI(T3)后数月。广义估计方程模型将用于比较两组之间的时间跨越时间的差异变化。焦点小组访谈将在T1的促进者和参与者的T1和T3的干预组中进行。本研究将评估基于理论的NSI对年轻中风幸存者社区重返社会的短期和长期影响,并在中风后建立了一个新的社区重返社会模式,以告知未来的研究。结果还将提供有价值的证据,以开发年轻中风幸存者社区重返社会的临床准则。 ClinicalTrials.gov标识符:NCT04560140,在2020年9月23日注册。

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