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Common patient-reported outcomes across ICHOM Standard Sets: the potential contribution of PROMIS?

机译:普通患者报告的ICHOM标准套装结果:普遍促销的潜在贡献吗?

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The International Consortium for Health Outcomes Measurement (ICHOM) develops condition-specific Standard Sets of outcomes to be measured in clinical practice for value-based healthcare evaluation. Standard Sets are developed by different working groups, which is inefficient and may lead to inconsistencies in selected PROs and PROMs. We aimed to identify common PROs across ICHOM Standard Sets and examined to what extend these PROs can be measured with a generic set of PROMs: the Patient-Reported Outcomes Measurement Information System (PROMIS?). We extracted all PROs and recommended PROMs from 39 ICHOM Standard Sets. Similar PROs were categorized into unique PRO concepts. We examined which of these PRO concepts can be measured with PROMIS. A total of 307 PROs were identified in 39 ICHOM Standard Sets and 114 unique PROMs are recommended for measuring these PROs. The 307 PROs could be categorized into 22 unique PRO concepts. More than half (17/22) of these PRO concepts (covering about 75% of the PROs and 75% of the PROMs) can be measured with a PROMIS measure. Considerable overlap was found in PROs across ICHOM Standard Sets, and large differences in terminology used and PROMs recommended, even for the same PROs. We recommend a more universal and standardized approach to the selection of PROs and PROMs. Such an approach, focusing on a set of core PROs for all patients, measured with a system like PROMIS, may provide more opportunities for patient-centered care and facilitate the uptake of Standard Sets in clinical practice.
机译:卫生成果的国际财团(ICHOM)开发了在基于价值的医疗评估的临床实践中测量的条件特定的标准结果。标准集由不同的工作组开发,这是效率低下的,可能导致选定的专业和舞会中的不一致。我们旨在识别跨ICHOM标准集的共同利用,并检查这些专业人员可以用一般的舞会衡量:患者报告的结果测量信息系统(PROMIS?)。我们从39个ICHOM标准集中提出了所有专业人士和推荐的舞会。类似的专业人员被分类为独特的Pro概念。我们检查了这些Pro概念中的哪一个可以用销售来衡量。共有307种优点在39 ICHOM标准集中识别,建议使用114个独特的舞弊来测量这些优点。可以将307专业人员分为22个独特的Pro概念。可以通过ProMIS措施来衡量超过这些Pro概念的超过一半(17/22)个(覆盖大约75%和75%的舞会)。在ICHOM标准集中的优点中发现了相当大的重叠,并且术语中使用的巨大差异和推荐的舞会,即使对于相同的优点也是如此。我们建议选择优点和舞会的更普遍和标准化的方法。这种方法,专注于所有患者的一组核心专业职业专业职业专业专业专业专业专业专业专业专业顾问,可以为患者为中心的护理提供更多机会,并促进临床实践中标准集的摄取。

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