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首页> 外文期刊>Journal of Patient Experience >Experiences From a Coaching Program for Parents of Children and Adolescents With Type 1 Diabetes Developed Through Experienced-Based Co-Design (EBCD)
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Experiences From a Coaching Program for Parents of Children and Adolescents With Type 1 Diabetes Developed Through Experienced-Based Co-Design (EBCD)

机译：通过经验丰富的共同设计（EBCD）开发了1型糖尿病儿童和青少年儿童和青少年的教练计划的经验

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Many children and adolescents with type 1 diabetes (T1D) have difficulties reaching the national treatment goal for HbA1c (long-term blood sugar) which is associated with increased risk for complications. This makes it important to explore what patients and their caregivers describe important in coping with everyday life. The study has been conducted within a pediatric diabetes team in the south of Sweden. The aim was to explore how Experienced-Based Co-Design (EBCD) can be used to identify, test, and evaluate improvement efforts in order to support the family with a child with T1D. A modified variant of EBCD based on focus groups, workshops, and interviews with stakeholders was used. The improvement proposal parental coaching was tested and was appreciated by the participants. The qualitative content analysis of the interviews showed that the coaching program contributed to better confidence and self-efficacy. Both coaches and coachees described that the coaching contributed to better competence and a feeling of hope after attending the coach program. Experienced-Based Co-Design gave an opportunity to explore what′s important to improve, based on experiences and needs of several stakeholders.
机译：许多儿童和青少年具有1型糖尿病（T1D）难以达到HBA1C（长期血糖）的国家治疗目标，这与并发症风险增加有关。这使得探索什么患者及其护理人员在应对日常生活中描述重要意义。该研究已在瑞典南部的儿科糖尿病团队中进行。目的是探讨基于经验丰富的共同设计（EBCD）可以用于识别，测试和评估改进努力，以便与具有T1D的孩子一起支持家庭。使用基于焦点小组，研讨会和与利益相关者的访谈的EBCD修改变体。改善提案父母教练被测试并受到参与者的赞赏。面试的定性内容分析表明，教练计划有助于更好的信心和自我效能。两个教练和教练都描述了教练在参加教练计划后促进了更好的能力和希望的感觉。基于经验丰富的共同设计使有机会根据几个利益相关者的经验和需求来探讨改进的重要性。

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