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首页> 外文期刊>Journal of Patient Experience >Listening to Women’s Voices: Using an Adapted Photovoice Methodology to Access Their Emotional Responses to Diagnosis and Treatment of Breast Cancer
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Listening to Women’s Voices: Using an Adapted Photovoice Methodology to Access Their Emotional Responses to Diagnosis and Treatment of Breast Cancer

机译:倾听女性的声音:使用适应的光吞噬方法,以获取他们的情绪反应,以诊断和治疗乳腺癌

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Introduction: The emotional impact of a diagnosis of breast cancer in women and listening to their affective needs is not widely reported in the literature. Recent policies globally emphasize the importance of incorporating patients’ views in treatment. The aim of the study was to provide insights for health care professionals and make recommendations based on patients’ experiences. Breast cancer survivorship is increasing, but the long-term support needs of such women are less understood. Method: This exploratory study asked 20 white women from 2 urban centers in the UK about their experience of diagnosis and treatment for breast cancer. It used an adaptation of the photovoice methodology to examine a health issue and identify issues of importance and relevance to patients. It recognizes their expertise in their situation. Results: The themes identified were: Fear/Shock; Waiting; Lack of Control; Communication/Practicalities; Body image changes; Specialist versus nonspecialist Centers/Staff; and Ongoing Support. Discussion: The women provided images, with a written summary of their meaning, and discussed them in groups. They identified good practice and suggestions for how to improve the experience of diagnosis and treatment of breast cancer. Conclusion: The photovoice methodology provides a low-cost, easy to implement a way for patients to provide insight into their experience and contribute their knowledge to improve clinical practice. Visual images and patients’ words allow clinicians to have greater insight into the environment and priorities of patients which could have implications for their response to treatment and long-term care.
机译:介绍:文学中没有广泛报道妇女乳腺癌诊断和倾听其情感需求的情绪影响。全球最近的政策强调了将患者观察纳入治疗的重要性。该研究的目的是为医疗保健专业人员提供洞察力,并根据患者的经验提出建议。乳腺癌生存正在增加,但这些妇女的长期支持需求不太了解。方法:这项探索性研究询问了英国2个城市中心的20名白人女性关于乳腺癌诊断和治疗的经验。它使用了Photovoice方法的适应来检查健康问题并确定与患者的重要性和相关性。它认识到他们的情况。结果:确定的主题是:恐惧/震惊;等待;缺乏控制;通信/实用;身体图像变化;专家与非专业主义中心/员工;和持续的支持。讨论:妇女提供了图像的书面摘要,他们的含义,并以团体讨论了它们。他们确定了如何提高乳腺癌诊断和治疗经验的良好做法和建议。结论:Photovoice方法提供了低成本,易于为患者提供洞察力的方式,并有助于改善临床实践的知识。视觉图像和患者的话语允许临床医生对患者的环境和优先事项有更大的洞察力,这可能对其对治疗和长期护理的反应产生影响。

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