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首页> 外文期刊>Journal of Patient Experience >From Lost in the System to Empowered Parent-Researcher
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From Lost in the System to Empowered Parent-Researcher

机译:从系统中丢失到赋权亲本研究员

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I used to live, what many would call, a normal life with 2 healthy sons and working full time as an information technology consultant. Six years ago, that life changed dramatically from 1 day to the next, when my youngest son, then aged 7 years, went from being an active boy to becoming totally paralyzed from his chest down. One Saturday evening, he started complaining of back pain. His right leg became numb and did not “wake-up” when my husband and I asked him to walk around the room. We went to the hospital and after a couple of hours in the emergency room, the staff told us to stay the night. The next morning, my son could no longer move his leg or empty his bladder. We panicked. Then everything happened very fast. After a magnetic resonance imaging examination, a neurologist told us our son had a cavernoma, a vascular malformation, in his spinal cord at the C4-6 level. He was moved to the intensive care unit and was surrounded by staff putting needles in him and connecting devices to him.
机译:我曾经生活过,很多人会叫什么,一个正常的生活,2个健康的儿子,全职工作作为信息技术顾问。六年前,当我最小的儿子,当时7年来,六年前,当我最小的儿子,然后7岁时,往往是一个活跃的男孩,从他的胸口完全瘫痪。一个星期六晚上,他开始抱怨背痛。当我的丈夫和我让他在房间里走路时,他的右腿变得麻木了,并没有“醒来”。我们去了医院,在急诊室几个小时后,工作人员告诉我们留下晚上。第二天早上,我的儿子再也不能移动了他的腿或空的膀胱。我们很奇怪。然后一切都很快了。在磁共振成像检查后,一位神经科医生告诉我们,我们的儿子在C4-6水平的脊髓中具有血管畸形,血管畸形。他被搬到了重症监护股,并被员工包围,把针给他并将设备连接到他。

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