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首页> 外文期刊>JMIR cardio. >The Danish Future Patient Telerehabilitation Program for Patients With Atrial Fibrillation: Design and Pilot Study in Collaboration With Patients and Their Spouses
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The Danish Future Patient Telerehabilitation Program for Patients With Atrial Fibrillation: Design and Pilot Study in Collaboration With Patients and Their Spouses

机译：心房颤动患者的丹麦未来患者观点计划：与患者及其配偶合作的设计和试验研究

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Background Atrial fibrillation (AF) is the most common cardiac arrhythmia and is predicted to more than double in prevalence over the next 20 years. Tailored patient education is recommended as an important aspect of AF care. Current guidelines emphasize that patients become more active participants in the management of their own disease, yet there are no rehabilitation programs for patients with AF in the Danish health care system. Through participatory design, we developed the Future Patient Telerehabilitation (TR) Programs, A and B, for patients with AF. The 2 programs are based on HeartPortal and remote monitoring, together with educational modules. Objective The aim of this pilot study is to evaluate and compare the feasibility of the 2 programs of TR for patients with AF. Methods This pilot study was conducted between December 2019 and March 2020. The pilot study consisted of testing the 2 TR programs, A and B, in two phases: (1) treatment at the AF clinic and (2) TR at home. The primary outcome of the study was the usability of technologies for self-monitoring and the context of the TR programs as seen from patients’ perspectives. Secondary outcomes were the development of patients’ knowledge of AF, development of clinical data, and understanding the expectations and experiences of patients and spouses. Data were collected through interviews, questionnaires, and clinical measurements from home monitoring devices. Statistical analyses were performed using the IBM SPSS Statistics version 26. Qualitative data were analyzed using NVivo 12.0. Results Through interviews, patients articulated the following themes about participating in a TR program: usefulness of the HeartPortal, feeling more secure living with AF, community of practice living with AF, and measuring heart rhythm makes good sense. Through interviews, the spouses of patients with AF expressed that they had gained increased knowledge about AF and how to support their spouses living with AF in everyday life. Results from the responses to the Jessa AF Knowledge Questionnaire support the qualitative data, as they showed that patients in program B acquired increased knowledge about AF at follow-up compared with baseline. No significant differences were found in the number of electrocardiography recordings between the 2 groups. Conclusions Patients with AF and their spouses were positive about the TR program and they found the TR program useful, especially because it created an increased sense of security, knowledge about mastering their symptoms, and a community of practice linking patients with AF and their spouses and health care personnel. To assess all the benefits of the Future Patient–TR Program for patients with AF, it needs to be tested in a comprehensive randomized controlled trial. Trial Registration ClinicalTrials.gov NCT04493437; https://clinicaltrials.gov/ct2/show/NCT04493437.
机译：背景室心房颤动（AF）是最常见的心律失常，预计未来20年的患病率多于两倍。建议量身定制的患者教育作为AF Care的一个重要方面。目前的指导方针强调，患者在自身疾病管理中变得更加积极的参与者，但丹麦医疗保健系统中的AF患者没有康复计划。通过参与式设计，我们为AF的患者开发了未来的患者Telerehilitation（TR）程序，A和B.这两个程序基于HeartPortal和远程监控，以及教育模块。目的是这项试点研究的目的是评估和比较AF患者TR的2种程序的可行性。方法这项试点研究于2019年12月至2020年12月进行。试点研究包括测试2个TR节目A和B的两阶段：（1）在AF诊所和（2）TR在家里进行治疗。该研究的主要结果是从患者的观点来看，自我监测技术和TR节目的背景的可用性。二次结果是发展患者AF，临床资料发展的知识，了解患者和配偶的期望和经验。通过来自家庭监控设备的采访，问卷调查和临床测量来收集数据。使用IBM SPSS统计标志26进行统计分析。使用NVIVO 12.0分析定性数据。结果通过面试，患者阐述了以下主题关于参与TR程序：心灵的有用性，感觉与AF的生活更安全，与AF的练习社区，以及测量心律的练习。通过采访，AF患者的配偶表明，他们已经增加了关于AF的知识以及如何在日常生活中使用AF生活的配偶。 jessa af知识问卷的响应结果支持定性数据，因为它们表明，程序B中的患者获得了与基线相比随访的关于AF的高度知识。在2组之间的心电图记录的数量中没有发现显着差异。结论TR节目的AF及其配偶患者对TR计划进行了阳性，他们发现TR计划有用，特别是因为它创造了增加的安全感，了解掌握症状的知识，以及与AF和其配偶患者联系起来的练习社区。医疗保健人员。为了评估AF的患者未来病人-TR程序的所有好处，需要在综合随机对照试验中进行测试。试验登记ClinicalTrials.gov NCT04493437; https://clinicaltrials.gov/ct2/show/nct04493437。

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