Writing for Patients on the Participatory Web: Heuristics for Purpose-Driven Personas

Bakke Abigail

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Writing for Patients on the Participatory Web: Heuristics for Purpose-Driven Personas

机译：在参与式网络上为患者写作：针对目标驱动型角色的启发式

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Background: The participatory web complicates professional communicators goals of providing accurate, usable, and trustworthy content, especially for health and medical topics. Professionals can better reach their audiences by understanding individuals purposes for using e-health. Literature review: Previous literature has shown the need for audience analysis in e-health, and has called for personalized, nuanced, and contextualized methods for developing audience-centered content. Professional communicators in e-health can use personas as a strategy to help account for users diverse, evolving, and extra-institutional purposes in accessing e-health, whether that content is professionally-generated or user-generated. Research questions: 1. What are patients larger information-seeking contexts 2. For what purposes do patients use e-health 3. How can professional communicators leverage this deepened understanding of their audiences purposes to improve their content Methods: In-depth interviews were conducted with seven community members who self-identified as e-health users. They were asked about their larger health information-seeking practices, specific instances of using e-health, and website preferences. Results: Participants use e-health among other sources including medical professionals. They use an array of e-health sites, including professional and user-generated sites, and have diverse purposes in using that array of sites.

机译：背景：参与式Web使专业传播者的目标变得复杂，这些目标提供准确，可用和可信赖的内容，尤其是针对健康和医学主题。通过了解个人使用电子医疗的目的，专业人员可以更好地覆盖他们的受众。文献综述：先前的文献表明，在电子医疗领域需要进行受众分析，并呼吁采用个性化，细化和上下文相关的方法来开发以受众为中心的内容。电子卫生领域的专业传播者可以使用角色作为策略，帮助用户在访问电子卫生领域时考虑到用户多样化，不断发展的机构外目的，无论该内容是由专业生成还是由用户生成。研究问题：1.什么是更大的患者寻求信息的环境2.患者使用电子医疗的目的是什么3.专业传播者如何才能利用对听众的加深理解来改善他们的内容方法：进行了深入访谈有七个自我认定为电子医疗用户的社区成员。他们被询问有关他们更大范围的健康信息搜索实践，使用电子健康的特定实例以及网站偏好。结果：参与者在包括医疗专业人员在内的其他来源中使用电子卫生。他们使用一系列电子卫生站点，包括专业站点和用户生成的站点，并且在使用该一系列站点时具有多种目的。

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《IEEE Transactions on Professional Communication》 |2019年第4期|318-333|共16页
作者
Bakke Abigail;
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Minnesota State Univ Dept English Mankato MN 56001 USA;

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正文语种 eng
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关键词
e-health; health information-seeking; medical communication; patients; personas; user-generated content (UGC); users;

机译：电子保健;寻求健康信息;医学交流;耐心;角色用户生成的内容（UGC）;使用者;

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1. Comparing satisfaction with a participatory driven web-application and a standard website for patients with low back pain: a study protocol for a randomised controlled trial (part of the ADVIN Back Trial) [J] . Allan Riis, Jan Hartvigsen, Michael Skovdal Rathleff, Trials . 2018,第1期

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2. Development of a Web-Based Health Care Intervention for Patients With Heart Disease: Lessons Learned From a Participatory Design Study [J] . Birgitte Noergaard PhD, Marianne Sandvei MA, Nina Rottmann PhD, JMIR Research Protocols . 2017,第5期

机译：基于Web的心脏病患者医疗保健干预措施的开发：从参与式设计研究中吸取的教训
3. Community-based participatory research to improve life quality and clinical outcomes of patients with breast cancer (DianaWeb in Umbria pilot study) [J] . Milena Villarini, Tiziana Marzulli, Vincenza Gianfredi, BMJ Open . 2016,第6期

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4. Participatory Design in the Development of a Web-based Technology for Visualizing Writing Activity as Knowledge Work [C] . Sarah Read, Anna DelaMerced, Mark Zachry ACM international conference on design of communication . 2012

机译：基于Web的技术开发中的参与式设计，用于将写作活动可视化为知识作品
5. Posthumous Persona(r)e: Machado de Assis, Black Writing, and the African Diaspora Literary Apparatus =Personas postumas: Machado de Assis, as letras negras, e o dispositivo literario do Afro-diaspora [D] . Marassa, Damien-Adia. 2018

机译：遗体（e）e：马查多·德阿西斯（Machado de Assis），黑人写作和非洲侨民文学设备=姿势者：马查多·德阿西斯（Machado de Assis），黑体字母和非洲黑人散居国外文学设备
6. Comparing satisfaction with a participatory driven web-application and a standard website for patients with low back pain: a study protocol for a randomised controlled trial (part of the ADVIN Back Trial) [O] . Allan Riis, Jan Hartvigsen, Michael Skovdal Rathleff, 2018

机译：通过参与性驱动的Web应用程序和腰痛患者的标准网站来比较满意度：一项针对随机对照试验的研究方案（ADVIN背部试验的一部分）
7. ACC/AHA/ESC guidelines for the management of patients with atrial fibrillation31This document was approved by the American College of Cardiology Board of Trustees in August 2001, the American Heart Association Science Advisory and Coordinating Committee in August 2001, and the European Society of Cardiology Board and Committee for Practice Guidelines and Policy Conferences in August 2001.32When citing this document, the American College of Cardiology, the American Heart Association, and the European Society of Cardiology would appreciate the following citation format: Fuster V, Rydén LE, Asinger RW, Cannom DS, Crijns HJ, Frye RL, Halperin JL, Kay GN, Klein WW, Lévy S, McNamara RL, Prystowsky EN, Wann LS, Wyse DG. ACC/AHA/ESC guidelines for the management of patients with atrial fibrillation: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines and the European Society of Cardiology Committee for Practice Guidelines and Policy Conferences (Committee to Develop Guidelines for the Management of Patients With Atrial Fibrillation). J Am Coll Cardiol 2001;38:XX-XX.33This document is available on the World Wide Web sites of the American College of Cardiology (www.acc.org), the American Heart Association (www.americanheart.org), the European Society of Cardiology (www.escardio.org), and the North American Society of Pacing and Electrophysiology (www.naspe.org). Single reprints of this document (the complete Guidelines) to be published in the mid-October issue of the European Heart Journal are available by calling +44.207.424.4200 or +44.207.424.4389, faxing +44.207.424.4433, or writing Harcourt Publishers Ltd, European Heart Journal, ESC Guidelines – Reprints, 32 Jamestown Road, London, NW1 7BY, United Kingdom. Single reprints of the shorter version (Executive Summary and Summary of Recommendations) published in the October issue of the Journal of the American College of Cardiology and the October issue of Circulation, are available for $5.00 each by calling 800-253-4636 (US only) or by writing the Resource Center, American College of Cardiology, 9111 Old Georgetown Road, Bethesda, Maryland 20814. To purchase bulk reprints specify version and reprint number (Executive Summary 71-0208; full text 71-0209) up to 999 copies, call 800-611-6083 (US only) or fax 413-665-2671; 1000 or more copies, call 214-706-1466, fax 214-691-6342; or E-mail: pubauth@heart.org. A report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines and the European Society of Cardiology Committee for Practice Guidelines and Policy Conferences (Committee to Develop Guidelines for the Management of Patients With Atrial Fibrillation) Developed in Collaboration With the North American Society of Pacing and Electrophysiology [O] . Fuster Valentin, Rydén Lars E., Asinger Richard W., 2001

机译：ACC / AHA / ESC治疗房颤患者指南31该文件于2001年8月获得美国心脏病学会董事会，2001年8月美国心脏协会科学咨询与协调委员会以及欧洲心脏病学会的批准以及实践指南和政策委员会会议（2001年8月）。32引用本文件时，美国心脏病学会，美国心脏协会和欧洲心脏病学会将赞赏以下引用格式：Fuster V，RydénLE，Asinger RW，Cannom DS，Crijns HJ，Frye RL，Halperin JL，Kay GN，Klein WW，LévyS，McNamara RL，Prystowsky EN，Wann LS，Wyse DG。 ACC / AHA / ESC治疗房颤患者的指南：美国心脏病学会/美国心脏协会实践指南工作组和欧洲心脏病学会实践指南委员会和政策会议的报告（制定指南委员会）用于房颤患者的治疗）。 J Am Coll Cardiol 2001; 38：XX-XX.33本文件可在美国心脏病学会（www.acc.org），美国心脏协会（www.americanheart.org），欧洲的万维网站点上找到心脏病学会（www.escardio.org）和北美起搏和电生理学会（www.naspe.org）。可致电+44.207.424.4200或+44.207.424.4389，传真+44.207.424.4433或写信给Harcourt Publishers，以获取本文档（完整的准则）的单份重印本（完整的准则），该印刷本将于10月中旬出版。欧洲心脏杂志，ESC指南–转载，英国伦敦詹姆斯敦路32号，NW1 7BY。短版（执行摘要和建议摘要）的单版重印在《美国心脏病学会杂志》十月刊和《循环》十月刊上，致电800-253-4636（仅美国），每本售价5.00美元。）或写信给美国心脏病学院资源中心，地址是：马里兰州贝塞斯达市Old Georgetown Road 9111，邮编20814。要购买批量转载，请指定版本和转载编号（执行摘要71-0208；全文71-0209），最多999份，致电800-611-6083（仅限美国）或传真413-665-2671； 1000或更多副本，请致电214-706-1466，传真214-691-6342;或电子邮件：pubauth@heart.org。美国心脏病学会/美国心脏协会实践指南工作组和欧洲心脏病学会实践指南和政策会议（制定房颤患者治疗指南委员会）的报告是与北方合作开发的美国起搏与电生理学会

Writing for Patients on the Participatory Web: Heuristics for Purpose-Driven Personas

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