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首页> 外文期刊>Journal of Genetic Counseling >Effectiveness of Pre-counseling Genetic Education Workshops at a Large Urban Community Health Center Serving Low-Income Chinese American Women
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Effectiveness of Pre-counseling Genetic Education Workshops at a Large Urban Community Health Center Serving Low-Income Chinese American Women

机译：在一个大型城市社区卫生中心为低收入的华裔美国妇女提供服务的咨询前基因教育研讨会的有效性

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摘要

Chinese American pregnant women and women of childbearing age face economic, cultural and linguistic barriers in accessing mainstream health care services. The Charles B. Wang Community Health Center developed a culturally and linguistically competent genetic education workshop for high-risk Chinese American prenatal patients. Patients referred for genetic counseling for thalassemia, abnormal triple screen results, and/or advanced maternal age were recruited to participate in the workshop. The workshop provided basic “genetic 101” education, focusing on topics that were directly relevant to the patients’ reasons for referral. The effectiveness of the workshop was measured using a quasi-experimental design with pre-post surveys administered to intervention and control group participants. The evaluation also included a genetic counselor assessment and a pilot study of genetic counseling appointment length. Overall, workshop participants showed significant increases in knowledge, positive attitude and self-efficacy regarding genetic services as compared to their control group counterparts. The pilot appointment length study data revealed that the workshop reduced the length of the genetic counseling appointment time by 40%. These positive findings suggest that it would be worthwhile to replicate the genetic education workshop at other health agencies serving Chinese-speaking populations and that further evaluation research should be conducted.
机译：美国华裔孕妇和育龄妇女在获得主流卫生保健服务方面面临经济，文化和语言障碍。查尔斯·B·王社区卫生中心为高危的华裔美国产前患者开设了具有文化和语言能力的遗传教育讲习班。招募了接受地中海贫血，三重筛查结果异常和/或高产年龄的遗传咨询的患者参加研讨会。该讲习班提供了基本的“遗传101”教育，重点是与患者转诊原因直接相关的主题。研讨会的有效性通过准实验设计进行了评估，并向干预和对照组参与者进行了事前调查。评估还包括遗传咨询师评估和遗传咨询任期的初步研究。总体而言，与对照组相比，参加研讨会的人员在遗传服务方面的知识，积极态度和自我效能大大提高。飞行员预约时间研究数据显示，该研讨会将基因咨询预约时间缩短了40％。这些积极的发现表明，有必要在为中国人口服务的其他卫生机构中推广基因教育研讨会，并应开展进一步的评估研究。

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    《Journal of Genetic Counseling》 |2011年第6期|p.593-608|共16页
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