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首页> 外文期刊>Journal of Health Services Research & Policy >Patients' consent preferences regarding the use of their health information for research purposes: a qualitative study
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Patients' consent preferences regarding the use of their health information for research purposes: a qualitative study

机译：患者出于研究目的使用其健康信息的同意偏好：定性研究

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Objective: To explore the consent preferences of patients whose health data are currently being used for researchnpurposes.nMethods: Semi-structured interviews were conducted with 17 patients whose primary physicians were taking part inna study that utilized de-identi. ed individual-level health information from their electronic medical record. Allnphysicians practised in southwestern Ontario. All interviews were taped, transcribed verbatim and analysed using anconstant comparative method. All transcripts and debrie. ng notes were read and reread to elicit general themes.nResults: Three main themes emerged from the data: patients recognized the need to balance their consentnpreferences with time pressures in the clinical encounter when deciding the nature of consent for a study; patientsngenerally regarded the seeking of consent as being an issue of respect for them as individuals; and patients were alsonweighing their perceived bene. ts and concerns related to the research. For these patients, seeking their consent wasnan important step in research participation. For some patients, the sponsor and the research topic were factors thatnwould in uence their decision to provide consent.nConclusion: Patients want their consent to be sought when their data are used for research purposes. This willninvolve explicitly informing patients that a study is taking place, providing written consent and offering regularnupdates about the study.
机译：目的：探讨目前正在将健康数据用于研究目的的患者的同意偏好。n方法：对17名患者进行了半结构化访谈，这些患者的主治医师正在参加使用去身份识别的研究。从他们的电子病历中获得个人级别的健康信息。内科医生在安大略省西南部执业。所有采访都进行录音，逐字记录并使用恒定比较方法进行分析。所有成绩单和遗物。 ng注释经过阅读和重新阅读以引起一般主题。n结果：数据中出现了三个主要主题：患者在确定研究同意的性质时认识到需要在临床遭遇中平衡他们的同意偏好和时间压力；患者通常将寻求同意视为尊重他们个人的问题；患者也在权衡自己的良知。与研究有关的问题。对于这些患者，征得他们的同意是参与研究的重要一步。对于某些患者，赞助者和研究主题是影响他们决定是否提供同意的因素。n结论：当患者的数据用于研究目的时，患者希望征得他们的同意。这将明确地告知患者正在进行一项研究，提供书面同意并定期提供有关该研究的最新信息。

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