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首页> 外文期刊>Journal of Health Services Research & Policy >In the absence of evidence, who chooses? A qualitative study of patients' needs after treatment for colorectal cancer
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In the absence of evidence, who chooses? A qualitative study of patients' needs after treatment for colorectal cancer

机译：在没有证据的情况下，谁选择？对结直肠癌患者治疗后需求的定性研究

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Objectives: To identify the range of patient pathways following surgery for colorectal cancer and explore patients’nneeds and preferences for follow-up.nMethods: A survey of hospitals within the UK Colorectal Cancer Services Collaborative and qualitative thematicnanalysis of 39 in-depth narrative interviews with colorectal cancer patients. Participants volunteered or werencontacted through hospital consultants, support groups and general practitioners (GPs). Most of the interviews werencollected in respondents’ homes, throughout the UK.nResults: Thirty-five (70%) hospitals supplied details of their follow-up regime. There was a wide variation: onlynthree hospitals specifically stated that patients were given a choice about the type of follow-up. The patients’ninterviews highlighted their need for a responsive GP and realistic information about recovery, resources and diet.nChoice is particularly important because patients differ in their views of the benefits of hospital follow-up.nConclusions: The absence of evidence about what constitutes ideal clinical follow-up for colorectal cancer isnreflected in current hospital practice. In such circumstances, the preferences of individual patients are particularlynimportant. Not all patients want repeated specialist investigations but those without stomas, and therefore no accessnto a stoma nurse, need another source of advice about recovery and long-term practical help. Follow-up carenorganised by GPs may be acceptable to many patients. We suggest a list of topics for GPs to discuss with theirnpatients about follow-up. The needs described by patients are not extensive and could often be met by existingnresources.
机译：目的：确定结直肠癌手术后患者的途径范围，并探讨患者的随访需求和喜好。n方法：对英国结直肠癌服务部门的医院进行的一项调查和定性主题分析，对39例深入的叙述性访谈进行了调查。大肠癌患者。参与者通过医院顾问，支持小组和全科医生（GPs）自愿或与之联系。结果：大多数访谈都没有收集到整个英国的受访者家中。n结果：35家（70％）医院提供了其随访方案的详细信息。差异很大：只有三家医院明确指出，可以选择患者的随访类型。患者的访谈强调了他们需要有回应的GP和关于康复，资源和饮食的现实信息。选择尤为重要，因为患者对医院随访的益处看法不同。n结论：缺乏有关理想药物的证据目前医院的实践并未反映出对大肠癌的临床随访。在这种情况下，个别患者的偏好尤为重要。并非所有患者都希望重复进行专科检查，但是没有气孔的患者（因此没有造口护理人员）需要有关恢复和长期实践帮助的其他建议。全科医生进行的随访可能被许多患者接受。我们为全科医生建议一个主题列表，以便与他们的患者讨论后续行动。患者描述的需求并不广泛，通常可以通过现有资源来满足。

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