Biobanks need publicity

George Gaskell; Herbert Gottweis

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Biobanks need publicity

机译：生物库需要宣传

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In the late 1990s, the company deCODE Genetics in Reykjavik sought to pool medical and genealogical records with genetic data for the entire Icelandic population - with the intention of marketing the database to scientists. The project quickly came under fire as critics found holes in the company's plans for encrypting data, and in the rules that would govern access, patient consent and data ownership. The firm eventually moved ahead, but filed for bankruptcy in 2009.

机译：在1990年代后期，位于雷克雅未克的deCODE Genetics公司寻求将整个冰岛人口的医学和家谱记录与遗传数据合并在一起-旨在将数据库销售给科学家。评论家发现该公司加密数据的计划以及管理访问，患者同意和数据所有权的规则中存在漏洞，因此该项目很快遭到抨击。该公司最终取得了进展，但于2009年申请破产。

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来源
《Nature》 |2011年第7337期|p.159-160|共2页
作者
George Gaskell; Herbert Gottweis;
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作者单位

Economics and Political Science, London WC2A 2AE, UK. He coordinates a European Commission project on technologies and public ethics;

Science Governance Research Platform, Department of Political Science, University of Vienna, Vienna, Austria;

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收录信息美国《科学引文索引》(SCI);美国《工程索引》(EI);美国《生物学医学文摘》(MEDLINE);美国《化学文摘》(CA);
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7. Biobanks need publicity [O] . George Gaskell, Herbert Gottweis 2011

机译：Biobanks需要宣传

Biobanks need publicity

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