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首页> 外文期刊>Practice >User Perspective on Palliative Care Services: Experiences of Middle-aged Partners Bereaved through Cancer Known to Social Work Services in Northern Ireland
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User Perspective on Palliative Care Services: Experiences of Middle-aged Partners Bereaved through Cancer Known to Social Work Services in Northern Ireland

机译：用户对姑息治疗服务的看法：北爱尔兰社会工作服务所熟知的癌症导致中年伴侣的经历减少

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摘要

This qualitative research study explores experiences of partners bereaved through cancer, who were resident in an urban area of Northern Ireland and who had been service users of the social work services. Data were collected in 2004 from 10 individuals who participated in semi-structured interviews. Emergent themes were identified using thematic content analysis and findings analysed under four categories: cancer journey; impact of bereavement; process of adjustment and change; and experience of support services. Opportunities to facilitate communication were not always maximised, often resulting in poor bereavement outcomes. Although hospices undertook bereavement risk assessment, participants were unaware of its use and queried its accuracy without service user involvement. The most cited informal support was family and friends, although such help was time-limited. Service user feedback regarding social workers was generally positive; however, there was a lack of knowledge about their role in palliative care. Post-bereavement adjustment was influenced by the quality of social networks, the responsibilities of lone parenthood, and challenges to life values and core beliefs. A framework for palliative care social work has been recommended based on research findings.
机译：这项定性研究研究探索了因癌症而丧生的伴侣的经验，这些伴侣居住在北爱尔兰市区，并且曾经是社会工作服务的服务使用者。 2004年从参与半结构化访谈的10个人中收集了数据。使用主题内容分析对发现的新主题进行识别，并根据以下四类分析结果进行分析：丧亲的影响；调整和变更过程；和支持服务的经验。促进交流的机会并不总是被最大化，常常导致丧亲之痛。尽管收容所进行了丧亲风险评估，但参与者并未意识到它的使用，并在没有服务使用者参与的情况下询问其准确性。被引用最多的非正式支持是家人和朋友，尽管这种帮助是有时间限制的。服务使用者对社会工作者的反馈总体上是积极的；然而，缺乏关于其在姑息治疗中作用的知识。婚后调整受到社交网络的质量，孤独父母的责任以及对生活价值观和核心信念的挑战的影响。根据研究结果，推荐了姑息治疗社会工作框架。

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