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首页> 外文期刊>Progress in Palliative Care >User involvement in palliative care: motivational factors for service users and professionals
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User involvement in palliative care: motivational factors for service users and professionals

机译：用户参与姑息治疗：服务用户和专业人员的动机因素

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Background: Few studies shed light on what motivates or discourages patients, carers and professionals for participating in user involvement activities.Aim: To identify motivational factors that affect the engagement of service users and professionals with user-involvement activities.Methods: As part of a larger scoping study of user involvement in palliative care, 51 semistructured interviews were conducted with service users, palliative care professionals and experts to explore experiences of user-involvement initiatives. Four user-involvement programmes were also observed. Data were analysed using a thematic analysis technique. A subsequent consultation meeting with 48 service users and professionals discussed the preliminary findings.Results: User involvement has been predominantly developed through a 'top-down' professional agenda. A few highly motivated individuals, both service users and palliative care professionals, are extremely influential in starting and maintaining user involvement. Reported benefits include personal satisfaction and status but barriers are tokenism and time pressures.
机译：背景：很少有研究能揭示出什么因素促使或劝阻患者，护理人员和专业人员参与用户参与活动目的：识别影响服务用户和专业人员参与用户参与活动的动机因素方法：作为一部分用户参与姑息治疗的范围界定范围较大的研究，与服务用户，姑息治疗专业人员和专家进行了51次半结构化访谈，以探索用户参与计划的经验。还观察到四个用户参与程序。使用主题分析技术分析数据。随后与48位服务用户和专业人员进行的磋商会议讨论了初步发现。结果：用户参与主要是通过“自上而下”的专业议程发展起来的。一些积极进取的个人，包括服务用户和姑息治疗专业人员，在启动和保持用户参与方面都具有极大的影响力。报告的收益包括个人满意度和地位，但障碍是象征主义和时间压力。

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