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Needs and preferences of patients with diseases other than cancer: the UK experience

机译：癌症以外的疾病患者的需求和偏好：英国的经验

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摘要

It is only in the last few years in the UK that serious attention has been paid by politicians and policy makers to the issue of palliative care needs beyond cancer. This review examines selected examples of research undertaken in the last 20 years. These have shown clearly that patients with other diseases, who tend to be aged over 65 years, experience disadvantage in terms of health and social care provision, particularly specialist palliative care, in spite of needs that are similar to those with advanced cancer. Findings from these studies have informed the debates in the UK about the wider provision of palliative care with policy guidance now emerging in the areas of long-term conditions and older age, which in turn has prompted new research. Gaps and priorities for future research are identified as the following: socially structured disadvantage and the relationship to palliative care need; cultural and social diversity; physical and mental co-morbidity; frailty; and prognostication and planning for care.
机译：直到最近几年，英国政客和政策制定者才对癌症以外的姑息治疗需求给予了认真的关注。这篇综述研究了过去20年中精选的研究实例。这些已经清楚地表明，患有其他疾病的患者（往往年龄超过65岁）尽管需要与晚期癌症患者相似，但在提供健康和社会护理（尤其是专科姑息治疗）方面处于不利地位。这些研究的结果为英国辩论提供了更多信息，有关在长期病情和年龄较大的领域中出现了越来越广泛的姑息治疗和政策指导，这反过来又促使了新的研究。未来研究的差距和重点如下：社会结构不利以及与姑息治疗需求的关系；文化和社会多样性；身心合并症；虚弱以及预后和护理计划。

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