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The experience of supporting a dying relative: reflections of caregivers

机译：支持垂死亲人的经历：照顾者的反思

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This article describes family caregivers' responses to a National Inquiry into the Social Impact of Caregiving for Terminally Ill, initiated by Palliative Care Australia, which aimed to influence policy and practice to support caregivers. Caregivers recounted their experiences of supporting a dying relative and reported their unmet needs and the impact that the caregiving role had on their financial, physical and psychosocial wellbeing. The issues raised by caregivers were consistent with data obtained from a wide cross-section of service providers and a number of findings were congruent with empirical literature related to family caregiving. Caregivers' reports confirm that, to maintain their health and well-being, they need adequate resources, fairer remuneration, quality respite care, education about the role, equipment, psychosocial support, home-help, improved access to the paid workforce and to gain community recognition. Such collected evidence reinforced the importance of policy responses and resource allocations that are focused on helping caregivers perform a vital role into the future.
机译：本文介绍了家庭护理员对澳大利亚“姑息治疗”发起的“全国性疾病对终末期照护的社会影响的全国调查”的回应，该调查旨在影响支持看护者的政策和实践。护理人员讲述了他们支持垂死亲人的经历，并报告了他们未得到满足的需求以及护理角色对其财务，身体和心理社会幸福的影响。护理人员提出的问题与从众多服务提供商处获得的数据一致，许多发现与有关家庭护理的经验文献一致。护理人员的报告证实，为了维持健康，他们需要足够的资源，更公平的薪酬，高质量的暂托护理，关于角色，设备，心理支持，家政服务的教育，改善有偿劳动力的获取和获取社区认可。这些收集的证据加强了政策对策和资源分配的重要性，这些对策和资源分配致力于帮助护理人员在未来发挥至关重要的作用。

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