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The quality of life of people in chronic pain: Developing a pain and discomfort module for use with the WHOQOL

机译：患有慢性疼痛的人的生活质量：开发与WHOQOL一起使用的疼痛和不适模块

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摘要

This article reports the development of a pain and discomfort module (PDM) designed to assess the full impact of quality of life (QoL) relating to chronic pain, which could be used with the generic World Health Organisation Quality of Life Assessment (WHOQOL). First, cognitive interviewing was completed with nine participants with chronic pain, for 108 items representing 10 pain-specific facets of QoL. Sixty-eight QoL items and 16 importance questions on pain were relevant, comprehensive, comprehensible and acceptable to users, and were confirmed to assess their purported concepts. Secondly, these items were pilot tested using a cross-sectional survey of 216 people with chronic pain, to investigate the preliminary psychometric properties of the PDM, and reduce its items statistically. All new facets were important to those with chronic pain. Sixteen items within four facets of pain relief, anger and frustration, vulnerability/fear/worry, and uncertainty were retained, and demonstrated acceptable to good internal consistency reliability ( = 0.77-0.85). The PDM is a self-administered, multidimensional subjective assessment of pain-related QoL, with potential to evaluate pain-relieving interventions, identify sufferer's needs, and for survey use.
机译：本文报告了一种疼痛和不适模块（PDM）的开发，该模块旨在评估与慢性疼痛有关的生活质量（QoL）的全部影响，可以与世界卫生组织的一般生活质量评估（WHOQOL）一起使用。首先，完成了针对9位慢性疼痛参与者的认知访谈，调查对象包括108个代表10个疼痛特定方面的QoL的项目。 68项QoL项和16项关于疼痛的重要问题是相关的，全面的，可理解的并且为用户所接受，并已得到确认，可以评估其所谓的概念。其次，这些项目通过对216名慢性疼痛患者的横断面调查进行了试点测试，以调查PDM的初步心理计量特性，并从统计学上减少其项目。所有新方面对于患有慢性疼痛的人都很重要。在疼痛缓解，愤怒和沮丧，脆弱性/恐惧/担忧和不确定性的四个方面中的十六个项目得以保留，并被证明具有良好的内部一致性可靠性（= 0.77-0.85）。 PDM是一种自我管理的，与疼痛相关的QoL的多维主观评估，可以评估缓解疼痛的干预措施，确定患者的需求以及用于调查。

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