Public engagement with scientific evidence in health: A qualitative study among primary-care patients in an urban population

Marilyn M. Schapira; Diana Imbert; Eric Oh; Elena Byhoff; Judy A. Shea

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Public engagement with scientific evidence in health: A qualitative study among primary-care patients in an urban population

机译：具有科学证据的公众参与卫生保健：城市人口中初级保健患者的定性研究

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The purpose of this study is to explore the experience and perspective of patients regarding scientific evidence in health and the degree that this information impacts health behavior and medical decision making. A focus group study was conducted. Participants were recruited from an urban primary-care practice. The focus group discussions were audio-recorded, transcribed verbatim, and coded by two independent investigators. Emergent themes were identified. Participants (n = 30) ranged in age from 30 to 79years, 60% were female, 77% were black, and 50% had at least some college experience. Three thematic areas informed a wide range in level of interest regarding scientific study design and result information: (1) scientific literacy, (2) medical decision making style, and (3) impact of culture and community on decision making. Our findings indicate that communication strategies that incorporate key elements of scientific study design, methods, and results will most effectively translate findings from comparative effectiveness research to patient-informed decision making regarding evidence-based health interventions.

机译：这项研究的目的是探讨患者有关健康方面科学证据的经验和观点，以及该信息对健康行为和医疗决策的影响程度。进行了焦点小组研究。参与者是从城市初级保健实践中招募的。焦点小组的讨论是由两名独立的调查员进行录音，逐字记录和编码的。确定了紧急主题。参与者（n = 30）年龄从30岁到79岁不等，女性占60％，黑人占77％，至少50％具有一定的大学经历。三个主题领域引起人们对科学研究设计和结果信息的广泛兴趣：（1）科学素养；（2）医疗决策风格；（3）文化和社区对决策的影响。我们的发现表明，结合了科学研究设计，方法和结果的关键要素的沟通策略将最有效地将发现从比较有效性研究转变为基于证据的健康干预患者知情决策。

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来源
《Public understanding of science》 |2016年第5期|612-626|共15页
作者
Marilyn M. Schapira; Diana Imbert; Eric Oh; Elena Byhoff; Judy A. Shea;
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作者单位

Philadelphia VA Medical Center, USA Perelman School of Medicine, University of Pennsylvania, USA,Division of General Internal Medicine, Department of Medicine, Perelman School of Medicine, University of Pennsylvania, 1110 Blockley Hall, 423 Guardian Drive, Philadelphia, PA 19104, USA;

Perelman School of Medicine, University of Pennsylvania, USA;

Swarthmore College, USA;

Perelman School of Medicine, University of Pennsylvania, USA;

Perelman School of Medicine, University of Pennsylvania, USA;

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正文语种 eng
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关键词
decision making in science; health communication; patients; public understanding of science;

机译：科学决策;健康交流;耐心;公众对科学的理解;

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机译：了解影响患者和公众参与以及数字医疗干预招募的因素：定性研究的系统回顾
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6. Barriers and facilitators to patient and public engagement and recruitment to digital health interventions: protocol of a systematic review of qualitative studies [O] . Siobhan OConnor, Peter Hanlon, Catherine A ODonnell, 2016

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7. Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies [O] . O’Connor Siobhan., Hanlon Peter., O’Donnell Catherine A.., 2016

机译：了解影响患者和公众参与以及数字医疗干预招募的因素：定性研究的系统回顾

Public engagement with scientific evidence in health: A qualitative study among primary-care patients in an urban population

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