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Public bioethics and public engagement: the politics of 'proper talk'

机译:公共生物伦理学和公众参与:“正当谈话”的政治

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摘要

This article uses notions of "public talk" and "regulation as facilitation" to develop an account of public bioethics in the UK as a form of scientific governance, drawing on document analysis and expert interviews. First, this article will show the "ethical" problematization of scientific governance in the UK through the emergence of the Human Genetics Commission (HGC), Nuffield Council on Bioethics (NCB), and Human Fertilisation and Embryology Authority (HFEA). Second, it will argue that an "ethical" model has emerged alongside and partially displaced a "technical" model of expertise in scientific governance. The article will introduce the notion of "proper talk," a set of techniques for facilitating ethical debate, characterized by the active elicitation of public engagement and the inclusion of emotions and subjectivity. The article then questions whether the authority to categorize publics and identify "proper" ethical positions reintroduces problems of expertise in a new form.
机译:本文使用“公开演讲”和“以规制为便利”的概念,以文献分析和专家访谈为基础,以科学治理的形式来介绍英国的公共生物伦理学。首先,本文将通过人类遗传学委员会(HGC),努菲尔德生物伦理委员会(NCB)和人类受精与胚胎学管理局(HFEA)的出现,展示英国科学治理的“伦理”问题。第二,它将论证“道德”模型已经出现,并且部分取代了科学治理专业知识的“技术”模型。本文将介绍“适当的谈话”的概念,这是一种促进道德辩论的技术,其特征是积极唤起公众参与,并包含情感和主观性。然后,文章质疑对公众进行分类和确定“适当的”道德立场的权力是否以新形式重新引入了专业知识问题。

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