Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies

Marten J. Poley; Werner B. F. Brouwer; N. Job A. van Exel; Dick Tibboel

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Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies

机译：评估非正式照料者与健康有关的生活质量变化：对患有重大先天性异常儿童的父母的评估

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Relatively few attempts to measure the effects on the health-related quality of life (HRQoL) of informal caregivers within the context of economic evaluations have been reported. This paper is an exploratory attempt to find suitable methods to assess caregivers’ HRQoL, using a population of parents of children with major congenital anomalies.

机译：据报道，在经济评估的背景下，很少有人尝试测量对非正式护理人员的健康相关生活质量（HRQoL）的影响。本文是一项探索性尝试，目的是寻找患有严重先天性异常儿童的父母群体，以评估看护人的HRQoL。

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来源
《Quality of Life Research》 |2012年第5期|p.849-861|共13页
作者
Marten J. Poley; Werner B. F. Brouwer; N. Job A. van Exel; Dick Tibboel;
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作者单位

Department of Pediatric Surgery, Sophia Children’s Hospital, Erasmus MC, P.O. Box 2060, 3000 CB, Rotterdam, The Netherlands;

Department of Pediatric Surgery, Sophia Children’s Hospital, Erasmus MC, P.O. Box 2060, 3000 CB, Rotterdam, The Netherlands;

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正文语种 eng
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关键词
Economic evaluation; Valuation of informal care; Methodology; Quality of life; Neonatal surgery;

机译：经济评估;非正式护理评估;方法;生活质量;新生儿手术;

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1. Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies. [J] . Marten J Poley, Werner B F Brouwer, N Job A van Exel, Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation . 2012,第5期

机译：评估非正式照料者中与健康有关的生活质量变化：对患有重大先天性异常儿童的父母的评估。
2. Health-related quality of life in children assessed by their parents: evaluation of the psychometric properties of the CHQ-PF50 in two German clinical samples. [J] . Warschburger P, Landgraf JM, Petermann F, Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation . 2003,第3期

机译：由父母评估的儿童健康相关生活质量：在两个德国临床样本中评估CHQ-PF50的心理计量特性。
3. Motor-function and exercise capacity in children with major anatomical congenital anomalies: an evaluation at 5 years of age. [J] . van der Cammen van Zijp MH, Gischler SJ, Mazer P, Early human development . 2010,第8期

机译：患有重大解剖先天性异常的儿童的运动功能和运动能力：5岁时进行的评估。
4. Effective Design of Serious Games for Children with Chronic Diseases: The Role of Parents and Caregivers [C] . Dimitra Pappa, Emmanouil Zoulias, John Mantas International Conference on Informatics, Management, and Technology in Healthcare . 2020

机译：慢性病儿童严重游戏的有效设计：父母和照顾者的作用
5. Health-Related Internet as a Caregiver Resource for Informal Caregivers of Individuals with Dementia. [D] . Kim, Hee Jung. 2012

机译：与健康相关的互联网，作为痴呆症患者非正式照料者的照料者资源。
6. Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies [O] . Marten J. Poley, Werner B. F. Brouwer, N. Job A. van Exel, -1

机译：评估非正式照料者与健康有关的生活质量变化：对患有重大先天性异常儿童的父母的评估
7. Assessing health-related quality-of-life changes in informal caregivers: An evaluation in parents of children with major congenital anomalies [O] . Poley M.J. (Marten), Brouwer W.B.F. (Werner), Exel N.J.A. (Job) van, 2012

机译：评估非正式照料者与健康有关的生活质量变化：对患有重大先天性异常儿童的父母的评估

Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies

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