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首页> 外文期刊>Quality of Life Research >Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: at present, in retrospect and in comparison with EORTC-QLQ-C30+LC13
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Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: at present, in retrospect and in comparison with EORTC-QLQ-C30+LC13

机译：关于无法手术的肺癌患者最令人担忧的自发报告：目前，回顾性分析以及与EORTC-QLQ-C30 + LC13的比较

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摘要

Patients with lung cancer experience considerable distress. Therefore, accurate methods for assessing distress and quality of life over time may play a key role for managing and evaluating palliative care. Alternatives to commonly used standardized questionnaires are individual measures. This study prospectively and retrospectively explored the concerns that 46 patients with inoperable lung cancer spontaneously reported as causing most distress close to diagnosis and 6 months later. Changes in content individually generated through a structured inductive freelisting were compared with EORTC-QLQ-C30+LC13 ratings. The results showed that patients perceived a wide variety of concerns as most distressing and that their concerns changed over time. Between 56 and 62% of these concerns were assessed by items included in the EORTC-QLQ-C30+LC13 questionnaires. Furthermore, patients’ reports of most distress from fatigue, pain and dyspnea were not always reflected in intensity ratings of comparable EORTC-QLQ-C30+LC13 items. These results indicate that items included in standardized measures are not always adequate to assess patients’ concerns, priorities and changes over time. In addition to standardized questionnaires, individualized measures may be useful in the clinical palliative setting for providing detailed information about the individual’s problems and prioritizations.
机译：肺癌患者会感到极大的困扰。因此，随着时间的流逝，评估痛苦和生活质量的准确方法可能对管理和评估姑息治疗起着关键作用。常用的标准化调查表的替代方法是个别措施。这项研究进行了前瞻性和回顾性研究，探讨了46例无法手术的肺癌患者自发报告称在诊断后和6个月后引起最大困扰的担忧。通过结构化的归纳自由列表单独生成的内容变化与EORTC-QLQ-C30 + LC13等级进行了比较。结果表明，患者认为各种各样的忧虑是最令人困扰的，他们的忧虑随时间而改变。通过EORTC-QLQ-C30 + LC13问卷中的项目评估了这些担忧中的56％至62％。此外，患者关于疲劳，疼痛和呼吸困难的最大困扰的报告并不总是反映在可比较的EORTC-QLQ-C30 + LC13项目的强度等级中。这些结果表明，标准化措施中包含的项目并不总是足以评估患者的担忧，优先事项和随着时间的变化。除了标准化的调查表之外，个性化的措施在临床姑息治疗中可能有用，它可以提供有关个人问题和优先次序的详细信息。

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  • 来源
    《Quality of Life Research》 |2007年第10期|1635-1645|共11页
  • 作者

    Eva Broberger; Carol Tishelman; Louise von Essen; Eva Doukkali; Mirjam A. G. Sprangers;

  • 作者单位

    Department of Neurobiology Care Sciences and Society Division of Nursing Karolinska Institutet Stockholm Sweden;

    Research and Development Unit Stockholm Sjukhem Foundation Stockholm Sweden;

    Department of Public Health and Caring Sciences Psychosocial oncology Uppsala University Uppsala Sweden;

    Department of Neurobiology Care Sciences and Society Division of Nursing Karolinska Institutet Stockholm Sweden;

    Department of Neurobiology Care Sciences and Society Division of Nursing Karolinska Institutet Stockholm Sweden;

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  • 原文格式 PDF
  • 正文语种 eng
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  • 关键词

    Change; Distress; Freelisting; Lung cancer;

    机译：变化;遇险;自由上市;肺癌;

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