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首页> 外文期刊>Quality of Life Research >The Impact of Lupus Erythematosus Cutaneous on the Quality of life: The Brazilian–Portuguese Version of DLQI
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The Impact of Lupus Erythematosus Cutaneous on the Quality of life: The Brazilian–Portuguese Version of DLQI

机译：皮肤红斑狼疮对生活质量的影响：DLQI的巴西葡萄牙语版本

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摘要

Objective: To translate into Brazilian–Portuguese, culturally adapt and validate the DLQI. Patients and Methods: The DLQI was translated into Brazilian–Portuguese and cultural adaptation was performed following the methodology proposed by Falcão. Inter-observer reliability and validity were assessed. Seventy-one patients with lupus erythematosus with cutaneous lesions selected from the outpatient dermatology clinic had their quality of life assessed by DLQI and SF-36. The validity of the Brazilian–Portuguese version of the DLQI was evaluated by the correlation of DLQI scores with SF-36 component scores and other outcome measures. Results: In the translation and cultural adaptation process the basic structure of DLQI was kept. Very few questions have very slightly modifications. Of the 71 patients, 83% were women and the median (SD) age was 38 (12) years. The patients had a mean (SD) disease duration of 8(6) years. There were 46 patients with active cutaneous lesions and 37 patients with alopecia. The DLQI inter-observer reliability coefficient was 0.96 (p<0.001). The DLQI mean (SD) score was 6.5 (5.6) and most of the SF-36 domains were between 60 and 70. The domains that had the lowest scores were ‘general health’ (62) and ‘mental health’ (62). The Pearson correlation coefficient between DLQI and each SF-36 component score were highly statistically significant (p<0.001), despite of being only moderate. As expected there was no correlation between DLQI or each one of the SF-36 components and age, disease duration or number of ACR criteria. Patients with active cutaneous lesions presented statistically significant lower scores of DLQI and SF-36 when compared to patients without active cutaneous lesions. Patients with alopecia presented a statistically significant lower score in DLQI when compared to patients without alopecia. Conclusions: The results suggest that the Brazilian–Portuguese version of the DLQI is a reliable and valid outcome measure to be used in LE clinical studies.
机译：目标：翻译成巴西葡萄牙语，在文化上适应和验证DLQI。患者和方法：DLQI被翻译成巴西葡萄牙语，并按照Falcão提出的方法进行了文化适应。观察者之间的信度和效度进行了评估。从门诊皮肤科门诊中选出的71名患有皮肤病变的红斑狼疮患者的生活质量通过DLQI和SF-36评估。通过DLQI评分与SF-36成分评分和其他结局指标的相关性，评估了巴西葡萄牙语版本DLQI的有效性。结果：在翻译和文化适应过程中，DLQI的基本结构得以保留。很少有问题有非常小的修改。在这71名患者中，有83％是女性，中位（SD）年龄为38（12）岁。患者的平均（SD）病程为8（6）年。有活动性皮肤损害的患者46例，脱发37例。 DLQI观察者之间的可靠性系数为0.96（p <0.001）。 DLQI平均（SD）得分为6.5（5.6），大多数SF-36域在60到70之间。得分最低的域是“一般健康”（62）和“精神健康”（62）。 DLQI和每个SF-36评分之间的Pearson相关系数尽管具有中等程度的统计意义，但具有很高的统计学意义（p <0.001）。如预期的那样，DLQI或SF-36的每一项与年龄，疾病持续时间或ACR标准数量之间均无相关性。与没有活动性皮肤病变的患者相比，活动性皮肤病变的患者表现出统计学上显着较低的DLQI和SF-36评分。与没有脱发的患者相比，脱发的患者在DLQI方面具有统计学意义的较低得分。结论：结果表明巴西葡萄牙语版本的DLQI是可用于LE临床研究的可靠且有效的结果指标。

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  • 来源
    《Quality of Life Research》 |2006年第3期|565-570|共6页
  • 作者

    L. B. Ferraz; F. A. Almeida; M. R. Vasconcellos; A. S. Faccina; R. M. Ciconelli; M. B. Ferraz;

  • 作者单位

    Department of Dermatology Federal University of São Paulo Rua Botucatu 685 040123-062 Sao Paulo Brazil;

    Department of Dermatology Federal University of São Paulo Rua Botucatu 685 040123-062 Sao Paulo Brazil;

    Department of Dermatology Federal University of São Paulo Rua Botucatu 685 040123-062 Sao Paulo Brazil;

    Department of Dermatology Federal University of São Paulo Rua Botucatu 685 040123-062 Sao Paulo Brazil;

    Division of Rheumatology Department of Medicine Federal University of São Paulo Brazil;

    Division of Rheumatology Department of Medicine Federal University of São Paulo Brazil;

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  • 原文格式 PDF
  • 正文语种 eng
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  • 关键词

    Lupus; Outcome measure; Quality of life; Questionnaire;

    机译：狼疮;结果测量;生活质量;问卷调查;

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