A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience;n         the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies

Lucy R. Wedderburn

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A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience;n the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies

机译：少年皮肌炎和其他小儿特发性炎症性肌病的国家注册机构：已有10年的经验； n少年皮肌炎国家（英国和爱尔兰）队列研究生物标志物和特发性炎症性肌病的知识库

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Objectives. The paediatric idiopathic inflammatory myopathies (IIMs) are a group of rare chronic inflammatory disorders of childhood, affecting muscle, skin and other organs. There is a severe lack of evidence base for current treatment protocols in juvenile myositis. The rarity of these conditions means that multicentre collaboration is vital to facilitate studies of pathogenesis, treatment and disease outcomes. We have established a national registry and repository for childhood IIM, which aims to improve knowledge, facilitate research and clinical trials, and ultimately to improve outcomes for these patients.

机译：目标。小儿特发性炎症性肌病（IIM）是一组儿童时期罕见的慢性炎症性疾病，会影响肌肉，皮肤和其他器官。少年肌炎的当前治疗方案严重缺乏证据基础。这些条件的稀有性意味着多中心协作对于促进发病机理，治疗和疾病结果的研究至关重要。我们已经建立了儿童IIM的国家注册处和资料库，旨在提高知识水平，促进研究和临床试验，并最终改善这些患者的结局。

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《Rheumatology》 |2011年第1期|p.137-145|共9页
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Lucy R. Wedderburn;
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1. A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience; the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies. [J] . Martin N, Krol P, Smith S, Rheumatology . 2011,第1期

机译：少年皮肌炎和其他小儿特发性炎症性肌病的国家注册机构：10年经验;全国青少年皮肌炎（英国和爱尔兰）队列研究生物标志物和特发性炎症性肌病的知识库。
2. Comparison of data from the juvenile dermatomyositis national (UK & Ireland) cohort biomarker study and repository for idiopathic inflammatory myopathies with a survey of current practice throughout the UK and Ireland [J] . N Martin, LR Wedderburn, JE Davidson, Pediatric rheumatology online journal . 2011,第S1期

机译：全国青少年皮肌炎（英国和爱尔兰）队列生物标志物研究和特发性炎症性肌病资料库的数据比较，以及英国和爱尔兰目前的实践调查
3. National registry of patients with juvenile idiopathic inflammatory myopathies in Hungary--clinical characteristics and disease course of 44 patients with juvenile dermatomyositis. [J] . Constantin T, Ponyi A, Orban I, Autoimmunity . 2006,第3期

机译：匈牙利青少年特发性肌病患者的国家注册-44例青少年皮肌炎患者的临床特征和病程。
4. Biomarker Status of Proteins in Circulating Immune Complexes Isolated from Dermatomyositis, Systemic Lupus Erythematosus and Juvenile Idiopathic Arthritis Plasma [C] . Leticia Cano American Society for Mass Spectrometry Conference on Mass Spectrometry and Allied Topics . 2010

机译：循环免疫复合物中蛋白质的生物标志物状态从皮肤病，全身性狼疮红斑和幼年特发性关节炎等离子体中分离出来的免疫复合物
5. Defining Clinical and Autoantibody Phenotypes in Patients with Juvenile Idiopathic Inflammatory Myopathies. [D] . Shah, Mona N. 2012

机译：定义青少年特发性炎症性肌病患者的临床和自身抗体表型。
6. Paediatric Rheumatology: A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years experience; the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies [O] . Neil Martin, Petra Krol, Sally Smith, -1

机译：小儿风湿病：少年皮肌炎和其他小儿特发性炎症性肌病的国家注册机构：10年经验；幼年性皮肌炎国家（英国和爱尔兰）队列生物标志物研究和贮藏库用于特发性炎症性肌病
7. A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience; the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies [O] . Martin, N, Krol, P., Smith, S., 2011

机译：青少年皮肌炎和其他小儿特发性炎症性肌病的国家登记处：10年经验;青少年皮肌炎国家（英国和爱尔兰）队列生物标志物特发性炎症性肌病的研究和储存库

A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience;n the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies

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