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Informed Refusal: Toward a Justice-based Bioethics

机译:知情拒绝:迈向基于正义的生物伦理

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"Informed consent" implicitly links the transmission of information to the granting of permission on the part of patients, tissue donors, and research subjects. But what of the corollary, informed refusal? Drawing together insights from three moments of refusal, this article explores the rights and obligations of biological citizenship from the vantage point of biodefectors-those who attempt to resist technoscientific conscription. Taken together, the cases expose the limits of individual autonomy as one of the bedrocks of bioethics and suggest the need for a justice-oriented approach to science, medicine, and technology that reclaims the epistemological and political value of refusal.
机译:“知情同意”将信息的传播与患者,组织捐赠者和研究对象的许可授予联系起来。但是,必然的知情拒绝是什么呢?本文从拒绝的三个时刻收集了一些见识,从生物偏转器(试图抵制技术科学征兵的人)的角度探讨了生物公民的权利和义务。综上所述,这些案例暴露了个人自治的极限,这是生物伦理学的基石之一,并表明需要一种以正义为导向的科学,医学和技术方法,以收回拒绝的认识论和政治价值。

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